Board of Directors

Sharon Lagas, President

Email: slagas@alportsyndrome.org

Sharon has a B.S. degree in Geological Sciences from Dickinson College in Carlisle, PA and completed graduate studies at the University of California, Long Beach. She worked in environmental consulting for over 15 years, in California and Arizona. Since 2001, Sharon has served as a volunteer leader on non-profit boards in various officer positions. She lives in Phoenix with her husband and her three children. Three generations of Sharon‘s family have been impacted by Alport syndrome including her mother and herself, as well as two of her children and her two nieces. Sharon‘s brother battled the effects of this disease for 38 years. Sharon looks forward to the day that all of our children will not have to worry about the effects of this disease and she is committed to accomplishing this through ASF.

Vint DeGraw, Vice President

Email: vdegraw@alportsyndrome.org

Vint has over 15 years‘ experience as a volunteer leader, and is known for his dedication and organizational skills. He holds a B.S. degree in Social Science from Southern Utah University and currently provides program support for Veteran Employment Services for the Utah Department of Workforce Services. Vint has Alport syndrome and has had two kidney transplants, separated by 20 months of dialysis. He is married and lives in Monticello, Utah with his five children. His daughter has Alport syndrome as well. Vint has been instrumental in bridging our current efforts with the past history of the Hereditary Nephritis Foundation, the Delphi Forum for Alport syndrome, and research efforts at the University of Utah.

Stanley Silver, Treasurer

Email: ssilver@alportsyndrome.org

Stan is the retired president of a multi-million dollar apparel company with over 40 years of worldwide business experience. He provides the Foundation with exceptional leadership, vision, professionalism, and organizational skills. He attended Alfred University and currently resides with his wife, Linda, in Scottsdale, Arizona. Two of his children (including Sharon Lagas) and four of his grandchildren are affected with Alport syndrome.

Lisa Bonebrake

Email:  lbonebrake@alportsyndrome.org

Through her work in museums and other non-profit organizations, Lisa has spent her professional and volunteer careers developing and implementing arts-based educational programs for public schools in Michigan, Illinois and California. She lives in San Diego with her husband and two teenage sons. Her youngest son was diagnosed with Alport syndrome in 2014, which led to her diagnosis as well. Alport syndrome Foundation has provided extraordinary guidance and support for her family. She is grateful to serve on the Board and participate in advancing the Foundation’s mission.

Marty Dunleavy

Email:  mdunleavy@alportsyndrome.org 

Marty holds a B.A in Computer Math and a M.S. in Executive Engineering from the University of Pennsylvania in Philadelphia, PA. He worked as a Systems Engineer for RCA/GE/Martin Marietta for 9 years and Computer Sciences Corporation for 2 years before starting his own Computer Consulting Company. In addition to running his company for the past 20 years, Marty has been a volunteer and board member for the local youth sports organization for the past 12 years. Marty lives in Medford, NJ with his wife Vicki and his four children. Marty is hopeful that one day a cure for Alport syndrome can be found.

Andrew Kronenberg

Andrew Kronenberg

Email: akronenberg@alportsyndrome.org

Andrew has been an art advisor and the owner of Andrew Kronenberg Fine Art LLC since 2004. He has a unique background in art and business, having worked previously in private banking providing art-backed financing and as a management consultant focusing on business strategy. Andrew holds a BA from the University of Pennsylvania, an MA in art history from NYU, and an MBA from the Wharton School at the University of Pennsylvania. He lives in New York City with his wife and their two children. Alport syndrome impacts Andrew’s immediate family, and he is committed to helping ASF achieve its mission.

Michael Panella

Email: mpanella@alportsyndrome.org

Mike has a B.B.A. (Bachelors of Business Administration) degree in Marketing from Iona College in New Rochelle, New York and owns an international shipping and mailing company. Mike is married and has two children and lives in Northern New Jersey. Mike‘s son, Michael, was diagnosed with Alport syndrome at the age of 3, which led to the discovery that his wife also has the disease. There was no prior history of Alport syndrome in the family. Mike‘s mission is to find and offer support through the Foundation, spread awareness and bring hope to families affected with Alport syndrome.

André Weinstock, PhD

Email: aweinstock@alportsyndrome.org

André has a BS in biochemistry and a PhD in analytical chemistry. His mother, sister, and he all showed idiopathic (Greek for “don’t know why”) renal and hearing problems growing up only to be diagnosed as Alport syndrome in the 1980s. André spent two years on hemodialysis prior to receiving a kidney transplant from an anonymous non-living donor. He has tried to make the best of this gift and spent the last two decades travelling the world, finding love, and building a career as a research scientist in the field of pharmaceuticals, medical devices, and diagnostics. André hopes that the next generation of people with Alport syndrome, including his nephew and nieces, never have to experience hemodialysis. He is also grateful for everyone, such as his donor, who makes the thoughtful and generous decision to sign their driver’s license as an organ donor.

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