Board of Directors

Sharon Lagas, President

Email: slagas@alportsyndrome.org

Sharon has a B.S. degree in Geological Sciences from Dickinson College in Carlisle, PA and completed graduate studies at the University of California, Long Beach. She worked in environmental consulting for over 15 years, in California and Arizona. Since 2001, Sharon has served as a volunteer leader on non-profit boards in various officer positions. She lives in Phoenix with her husband and her three children. Three generations of Sharon‘s family have been impacted by Alport Syndrome including her mother and herself, as well as two of her children and her two nieces. Sharon‘s brother battled the effects of this disease for 38 years. Sharon looks forward to the day that all of our children will not have to worry about the effects of this disease and she is committed to accomplishing this through ASF.

Vint DeGraw, Vice President

Email: vdegraw@alportsyndrome.org

Vint has over 15 years‘ experience as a volunteer leader, and is known for his dedication and organizational skills. He holds a B.S. degree in Social Science from Southern Utah University and currently provides program support for Veteran Employment Services for the Utah Department of Workforce Services. Vint has Alport Syndrome and has had two kidney transplants, separated by 20 months of dialysis. He is married and lives in Monticello, Utah with his five children. His daughter has Alport Syndrome as well. Vint has been instrumental in bridging our current efforts with the past history of the Hereditary Nephritis Foundation, the Delphi Forum for Alport Syndrome, and research efforts at the University of Utah.

Stanley Silver, Treasurer

Email: ssilver@alportsyndrome.org

Stan is the retired president of a multi-million dollar apparel company with over 40 years of worldwide business experience. He provides the Foundation with exceptional leadership, vision, professionalism, and organizational skills. He attended Alfred University and currently resides with his wife, Linda, in Scottsdale, Arizona. Two of his children (including Sharon Lagas) and four of his grandchildren are affected with Alport Syndrome.

Marty Dunleavy

Email:  mdunleavy@alportsyndrome.org 

Marty holds a B.A in Computer Math and a M.S. in Executive Engineering from the University of Pennsylvania in Philadelphia, PA.  He worked as a Systems Engineer for RCA/GE/Martin Marietta for 9 years and Computer Sciences Corporation for 2 years before starting his own Computer Consulting Company. In addition to running his company for the past 20 years, Marty has been a volunteer and board member for the local youth sports organization for the past 12 years. Marty lives in Medford, NJ with his wife Vicki and his four children. Marty is hopeful that one day a cure for Alport Syndrome can be found.

Michael Panella

Email: mpanella@alportsyndrome.org

Mike has a B.B.A. (Bachelors of Business Administration) degree in Marketing from Iona College in New Rochelle, New York.   For the past 13 years, he has owned an international shipping and mailing company, is married with two children and lives in Northern New Jersey. Mike‘s son, Michael, who is 9 years old, was diagnosed with AS at the age of 3, which led to the discovery that his wife is a carrier.   There was no prior Alport history in the family and as of 2014, his 10-year-old daughter shows no symptoms of AS. Mike‘s mission is to find and offer support through the Foundation, spread awareness and bring hope to families affected with AS.

Jane Schneirov

Email: jschneirov@alportsyndrome.org

Jane has over 20 years of professional experience in investment management and research.  For more than a decade, she has worked as a global equity portfolio manager – previously at a leading asset manager and now at a large sovereign wealth fund – managing portfolios focused in the Industrial and Infrastructure sectors.  Jane holds a BA from the University of Pennsylvania and an MBA from the Wharton School at the University of Pennsylvania.   She lives in New York, NY with her husband and their two children.   Alport Syndrome impacts Jane‘s immediate family, and she is passionate about raising awareness and helping to find effective treatments and ultimately a cure for the disease.

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