The Alport Syndrome Foundation announced the hiring of its first Executive Director, Gina Parziale, CFRE. This marks a significant change for the organization as it moves from an all-volunteer leadership to full-time professional leadership.
The Alport Syndrome Foundation is one of 16 kidney patient and health professional organizations who joined together on Capitol Hill for Kidney Community Advocacy Day to advance legislation that increases kidney research funding and removes barriers to living kidney donation.
Applications for the annual Paul Silver Tribute Award are now available. Awards up to a maximum of $1,000 will be granted to selected Alport Syndrome patients that are 16 to 22 years old. Completed applications are due on November 2, 2015.
The Alport Syndrome Foundation (ASF), Macquarie, Pedersen Family, Kidney Foundation of Canada (KFOC) Research Funding Program are pleased to announce two Alport Syndrome research projects receive $100,000 each.
The Alport Syndrome Foundation (ASF) is hosting the annual 5K for Healthy Kidneys in March, as well as sponsoring the first-ever Alport Awareness Month. Small nonprofit having a big impact during National Kidney Month.
The Alport Syndrome Foundation (ASF) announces the winners of the 2013 Paul Silver Tribute Award, designed to “pay it forward“ and assist young patients. Five outstanding kidney patients receive annual award.