Media Room

Find the latest information about the Alport Syndrome Foundation (ASF) in the current newsletter.

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Press Releases

Jul. 27, 2016

The Alport Syndrome Foundation, the Pedersen Family and The Kidney Foundation of Canada announce joint funding for two new research projects on Alport Syndrome.

Jul. 11, 2016

Applications are now being accepted for the 5th Annual Paul Silver Tribute Award. The award is aimed at enriching the lives of young Alport patients ages 16 to 22 and grants up to a maximum of $1,000.

Mar. 21, 2016

The Alport Syndrome Foundation announced the hiring of its first Executive Director, Gina Parziale, CFRE. This marks a significant change for the organization as it moves from an all-volunteer leadership to full-time professional leadership.

Feb. 21, 2016

The 9th annual 5K for Healthy Kidneys run/walk event will be held in Tempe, AZ, on Sunday, April 17.

Jan. 18, 2016

Announcing availability of funding for two $100,000 research projects on Alport Syndrome. Applications are due on March 21, 2016.

Jan. 8, 2016

Three outstanding young kidney patients have been awarded the fourth annual Paul Silver Tribute Award.

Sep, 10, 2015

The Alport Syndrome Foundation is one of 16 kidney patient and health professional organizations who joined together on Capitol Hill for Kidney Community Advocacy Day to advance legislation that increases kidney research funding and removes barriers to living kidney donation.

Aug. 3, 2015

Applications for the annual Paul Silver Tribute Award are now available. Awards up to a maximum of $1,000 will be granted to selected Alport Syndrome patients that are 16 to 22 years old. Completed applications are due on November 2, 2015.

Jun. 22, 2015

The Alport Syndrome Foundation (ASF), Pedersen Family, Kidney Foundation of Canada (KFOC) Research Funding Program is pleased to announce joint funding for two research projects on Alport Syndrome.

Feb 4, 2015

Announcing the availability of funding for two $100,000 research projects on Alport Syndrome. Applications are due on March 23, 2015.

Jan 20, 2015

Following her brother’s death from the affects of Alport Syndrome, Sharon Lagas co-founded the Alport Syndrome Foundation and started the annual 5K for Healthy Kidneys in Tempe, AZ.

Oct 6, 2014

Alport Syndrome patients ages 16+ without kidney failure may be eligible to participate in new observational study.

Sep 8, 2014

Alport Syndrome patients ages 16-22 are encouraged to apply for the Paul Silver  Tribute Award before the November 1, 2014, deadline.

 Jun 24, 2014

The Alport Syndrome Foundation (ASF), Macquarie, Pedersen Family, Kidney Foundation of Canada (KFOC) Research Funding Program are pleased to announce two Alport Syndrome research projects receive $100,000 each.

Feb 18, 2014

The Alport Syndrome Foundation (ASF) is hosting the annual 5K for Healthy Kidneys in March, as well as sponsoring the first-ever Alport Awareness Month. Small nonprofit having a big impact during National Kidney Month.

Jan 27, 2014

The Alport Syndrome Foundation (ASF) announces the winners of the 2013 Paul Silver Tribute Award, designed to “pay it forward“ and assist young patients. Five outstanding kidney patients receive annual award.

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