Media Room

Find the latest information about the Alport syndrome Foundation (ASF) in the current newsletter.

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Press Releases

Aug. 17, 2017

The Alport syndrome Foundation, the Pedersen Family and The Kidney Foundation of Canada announce joint funding for two new research projects on Alport syndrome.

Jul. 18, 2017

Applications are being accepted for the annual Paul Silver Tribute Award offered to young people living with Alport syndrome. The award helps these young patients complete a project or pursue an activity that will enhance the applicant’s life.

Mar. 29, 2017  Founder’s Story

ASF Board President Sharon Lagas reflects on the progress made in the Foundation’s first 10 years and what led her to co-found the organization. (Arizona Republic article)

Jan 20, 2015  Founder’s Story

Following her brother’s death from the affects of Alport syndrome, Sharon Lagas co-founded the Alport syndrome Foundation and started the annual 5K for Healthy Kidneys in Tempe, AZ.

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