Don’t miss the Alport Family Meetings!
These meetings are a great opportunity to hear from experts, meet other patients and families, and find support. Adult, teen/young adult, and childcare options available. Register today!
Ask the Experts Webinar Series
ASF hosts a monthly webinar series where experts address topics of interest to the Alport Syndrome community. Recordings of past webinars can be found on our website and the ASF YouTube channel.
Alport Syndrome Research Studies
The ATHENA observational study conducted by Regulus Therapeutics is still recruiting. The study seeks to learn more about the natural history of Alport Syndrome. No medications are administered as part of the study. The study is currently recruiting.
The CARDINAL study is an interventional Phase 2/3 study conducted by Reata Pharmaceuticals. The study tests the effectiveness of the drug bardoxolone methyl in treating chronic kidney disease caused by Alport Syndrome. The study is currently recruiting.
The HERA study is an interventional Phase 2 clinical study conducted by Regulus Therapeutics. The study will evaluate the safety and effectiveness of an investigational drug called RG-012. The study is expected to begin recruiting in mid-2017.
ASTOR Patient Registry
Participating in the patient registry allows patients, family members, and physicians to be informed of new clinical studies and trials. Join today!
Support ASF While You Shop
Support ASF while you shop online at Amazon, Best Buy, Nike, and thousands of other stores, including the ASF Store. Learn how!