ASF News

This is an exciting and busy time at ASF as many steps are being taken towards conquering Alport syndrome. While we are grateful for the lifesaving treatments of dialysis and transplantation, ASF is the only national organization dedicated entirely to finding treatments aimed specifically at Alport syndrome.  

Celina LaBrec-Salmons was the first person to register for the first-ever Alport syndrome Virtual Walk, which will be held on June 18. This is a national event to raise funds and awareness by encouraging people to participate in their own communities.

March 10 is World Kidney Day, a global awareness campaign to emphasize the importance of the two bean-shaped organs located in the back of our abdomens. The 2016 theme stresses the importance of early diagnosis and treatment of children with renal disease, a topic of particular interest to the Alport syndrome community.
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