Celina LaBrec-Salmons was the first person to register for the first-ever Alport Syndrome Virtual Walk, which will be held on June 18. This is a national event to raise funds and awareness by encouraging people to participate in their own communities.

March 10 is World Kidney Day, a global awareness campaign to emphasize the importance of the two bean-shaped organs located in the back of our abdomens. The 2016 theme stresses the importance of early diagnosis and treatment of children with renal disease, a topic of particular interest to the Alport Syndrome community.
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