Alport Syndrome always affects the kidneys and sometimes affects the eyes. It also causes hearing loss in many patients. October is Hearing Loss Awareness Month, offering the perfect time to take a look at how Alport Syndrome affects hearing.
There are many opportunities for patients and families to share their personal stories with legislators and influence decisions on proposed bills affecting individuals impacted by rare diseases like Alport Syndrome.
The most important members of your health care team are you and your family. One way to ensure you and your loved ones are receiving the best care possible is for you to take an active role in your care by working with your medical team and learning about your treatment.
The Alport Syndrome Foundation works closely with other organizations to improve the lives of patients impacted by kidney diseases and rare diseases like Alport Syndrome. Check out the exciting places we’ll be in the next few months!