Patient Perspectives

The Alport Family Meetings (AFM) provide a unique opportunity for members of our renal community to meet and mingle with other families affected by Alport Syndrome and simultaneously learn from the experts. Shannon and her husband attended our Los Angeles event (AFMLA) along with their son,

Celina LaBrec-Salmons was the first person to register for the first-ever Alport Syndrome Virtual Walk, which will be held on June 18. This is a national event to raise funds and awareness by encouraging people to participate in their own communities.
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