Family Meetings

2016 Alport Family Meetings

We are excited to announce a powerful patient engagement initiative for 2016—and beyond!

These meetings provided the opportunity to:

  • Meet other patients and families affected by Alport Syndrome
  • Get the latest research updates from leading experts
  • Learn more about disease management, available resources, and how to self advocate.

These two-day meetings provided vital information and connections for both newly diagnosed and seasoned patients and provided program tracks for parents/adults and one designed specifically and separately for teens and young adults. This track was facilitated by trained fellow young patients and patient mentors! We also had fun activities and childcare for children ages 5-12.


Three of these exciting meetings were held in 2016!

  • Children’s Hospital Los Angeles, CA (May)
  • Washington University, St. Louis, MO (July)
  • Hackensack University, Hackensack, NJ (September).

Click on the tabs for more information on each meeting location.

Thank you to our 2016 Alport Family Meeting sponsors!

National Visionary Sponsor:

Circle of Support Sponsors:

Website logos

National and local sponsorship opportunities available!

LOS ANGELES ALPORT FAMILY MEETING

Thank you to all who made our Los Angeles Alport Family Meeting in May such a success!

You can find pictures from the Los Angeles meeting on Flickr.

ST. LOUIS ALPORT FAMILY MEETING

Thank you to everyone who helped make our Los Angeles Alport Family Meeting in July so successful!

You can find pictures from the St. Louis meeting on Flickr.

Thank you to the sponsors of the 2016 St. Louis Family Meeting!

National Visionary Sponsor:

Circle of Support Sponsor:

Washington University

National and local sponsorship opportunities available!

HACKENSACK ALPORT FAMILY MEETING

Thank you for everyone who attended our Hackensack Alport Family Meeting in September! It was the largest family meeting this year.

You can find pictures from the Hackensack meeting on Flickr.

Thank you to the sponsors of the 2016 Hackensack Family Meeting!

National Visionary Sponsor:

Circle of Support Sponsor:

HUMC_V

National and local sponsorship opportunities available!

For questions about the 2016 Alport Family Meetings, please contact us at events@alportsyndrome.org or (480) 800-3510.

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