The Alport Family Meetings are a powerful patient engagement initiative for individuals and families.
These meetings provide the opportunity to:
Meet other patients and families affected by Alport syndrome
Get the latest research updates from leading experts
Learn more about disease management, available resources, and how to self advocate.
The two-day meetings provide vital information and connections for both newly diagnosed and seasoned patients and provide program tracks for parents/adults and one designed specifically and separately for teens and young adults. This track is facilitated by trained fellow young patients and patient mentors. We also have fun activities and childcare for children ages 5-12.
Join us for one of these upcoming Family Meetings!
2018 dates and locations will be announced soon.
SALT LAKE CITY, UTAH This meeting was held at the University of Utah in July 2017.