Upcoming Events

Virtual Walk

Saturday, June 17
Wherever you are!

The 2nd annual Alport Syndrome Virtual Walk is a national event to raise funds and awareness. Ask family, friends, co-workers, neighbors – everyone – to join you. You can walk at a local park, on a treadmill at the gym or around your neighborhood!

Registration is FREE. Set up an online fundraising page and win cool prizes when you meet fundraising goals. Get fundraising tips and other helpful information from the Virtual Walker’s Guide!

Make signs, wear ASF gear, carry balloons – be creative! Be sure to post a picture of your Virtual Walk on our Facebook page so everyone can see your efforts in action.

Annual Charity Climb

Tom Denham loves to climb difficult mountains and also wanted to do something to help people like his teenage daughter who are living with Alport Syndrome.

Tom has committed to raise $50,000 over ten years by climbing ten major mountains. Each year he climbs a challenging mountain and raises over $5,000 to benefit ASF. Check out his fundraising page to learn more about his sixth climb – Glacier Peak in the Northern Cascades.

Alport Family Meeting

Friday, July 14 – Saturday, July 15
Salt Lake City, UT

This meeting provides the opportunity to:

  • Meet other patients and families affected by Alport Syndrome
  • Get the latest research updates from leading experts
  • Learn more about disease management, available resources, and how to self advocate.

Separate tracks for parents/adults and teens/young adults, plus fun activities and childcare for children ages 5-12.

Register today to attend! Information on lodging, speakers and program agenda will be posted on the Family Meetings page.

Ohio 5K for Healthy Kidneys

Saturday, August 12
Grove City, OH

The first Ohio 5K for Healthy Kidneys will be held at Scioto Grove Metro Park. This event is hosted by a local family who has had three generations affected by Alport Syndrome.

Online registration is now open!

Alport Family Meeting

Saturday, October 7 – Sunday, October 8
Minneapolis, MN

This meeting provides the opportunity to:

  • Meet other patients and families affected by Alport Syndrome
  • Get the latest research updates from leading experts
  • Learn more about disease management, available resources, and how to self advocate.

Separate tracks for parents/adults and teens/young adults, plus fun activities and childcare for children ages 5-12.

Register today to attend! Information on lodging, speakers and program agenda will be posted on the Family Meetings page.

Join Team ASF

Are you participating in an athletic event or other competition? Join Team ASF and help spread awareness and raise funds to support patients and families affected by Alport Syndrome.

  1. Register for FREE to be part of Team ASF
  2. Raise $100 or more and receive a performance shirt and other goodies
  3. Wear your Team ASF shirt while competing in the event.

 

What is your passion? Join Team ASF today to create a fundraiser to help Alport Syndrome families.

Don‘t see an event in your area? Plan one! Contact events@alportsyndrome.org to add your event to this page.

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