Upcoming Events

Alport Awareness Month

The entire month of March is a chance to raise awareness of Alport Syndrome. If you have ever had someone tell you, “I’ve never heard of Alport Syndrome”, then you understand why Alport Awareness Month is necessary. And because we have a small patient community trying to educate a much larger public community, one day of awareness efforts is just not enough.

Plan now to participate in the 4th annual Alport Awareness Month by hosting an event, telling your story, wearing Alport Syndrome or ASF gear, or sharing information on social media.

Arizona 5K for Healthy Kidneys
10 years of hope, 10 years of progress

Sunday, April 2
Tempe, AZ

Join us as we commemorate the 10th anniversary of both the annual Arizona 5K for Healthy Kidneys and the creation of ASF!

The annual 5K run/walk event is family-friendly and supports education, awareness and advocacy. Online registration is available, as are free online fundraising tools and sponsorship opportunities.

Download our Runner’s Guide to learn more about fundraising!

Join Team ASF

Are you participating in an athletic event or other competition? Join Team ASF and help spread awareness and raise funds to support patients and families affected by Alport Syndrome.

  1. Register for FREE to be part of Team ASF
  2. Raise $100 or more and receive a performance shirt and other goodies
  3. Wear your Team ASF shirt while competing in the event.


Annual Charity Climb

Team ASF was created for people like Tom Denham. He loves to climb difficult mountains and also wanted to do something to help people like his teenage daughter who are living with Alport Syndrome.

Tom has committed to raise $50,000 over ten years by climbing ten major mountains. Each year he climbs a challenging mountain and raises over $5,000 to benefit ASF. Check out his fundraising page to learn more about his 2017 climb!

What is your passion?
Join Team ASF today to create a fundraiser to help Alport Syndrome families.

Save the Date

Mark your calendars for these exciting events in 2017!

Ohio 5K for Healthy Kidneys
The Ohio 5K for Healthy Kidneys will be held on Saturday, August 12, at Scioto Grove Metro Park, in Grove City, OH. Check back soon for more details.

Don‘t see an event in your area? Plan one! Contact events@alportsyndrome.org to add your event to this page.

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