Upcoming Events

Rare Disease Day

Tuesday, February 28

Rare Disease Day is an international day to raise awareness of the challenges of living with a rare disease. The 2017 theme is “Research brings hope to people living with a rare disease.” Rare disease research is crucial to providing patients with the answers and solutions they need, whether it’s a treatment, cure or improved care.

Plan now to participate by telling your story of living with Alport Syndrome on social media or with people you talk with that day or by hosting an awareness event in your area.

Alport Awareness Month

The entire month of March is a chance to raise awareness of Alport Syndrome. If you have ever had someone tell you, “I’ve never heard of Alport Syndrome”, then you understand why Alport Awareness Month is necessary. And because we have a small patient community trying to educate a much larger public community, one day of awareness efforts is just not enough.

Plan now to participate in the 4th annual Alport Awareness Month by hosting an event, telling your story, wearing Alport Syndrome or ASF gear, or sharing information on social media.

Join Team ASF

Are you participating in an athletic event or other competition? Join Team ASF and help spread awareness and raise funds to support patients and families affected by Alport Syndrome.

  1. Register for FREE to be part of Team ASF
  2. Raise $100 or more and receive a performance shirt and other goodies
  3. Wear your Team ASF shirt while competing in the event.

Save the Date

Mark your calendars for these exciting events in 2017!

World Kidney Day
World Kidney Day is a global awareness campaign aimed at raising awareness of the importance of our kidneys and reducing the frequency and impact of kidney disease. It will be held on Thursday, March 9, 2017.

Arizona 5K for Healthy Kidneys
The 10th annual Arizona 5K for Healthy Kidneys will be held on Sunday, April 2, at Kiwanis Community Park in Tempe, AZ.

Don‘t see an event in your area? Plan one! Contact events@alportsyndrome.org to add your event to this page.

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