Rare Disease Day
Tuesday, February 28
Rare Disease Day is an international day to raise awareness of the challenges of living with a rare disease. The 2017 theme is “Research brings hope to people living with a rare disease.” Rare disease research is crucial to providing patients with the answers and solutions they need, whether it’s a treatment, cure or improved care.
Plan now to participate by telling your story of living with Alport Syndrome on social media or with people you talk with that day or by hosting an awareness event in your area.