American Association of Kidney Patients https://www.aakp.org/ The American Association of Kidney Patients is a non-profit dedicated to providing patients with the education and knowledge necessary to ensure quality of life and quality of health.
American Kidney Fund http://www.kidneyfund.org/ The American Kidney Fund provides charitable assistance to dialysis patients who need help with the costs associated with treating kidney failure.
John F. Martin Website www.johnfmartin.net
This site chronicles a photojournalist‘s journey from diagnosis of Alport Syndrome through dialysis and transplant. The site contains many graphic photos of medical procedures and it is not suitable for all ages.
Kidney Foundation of Canada http://www.kidney.ca/ The Kidney Foundation of Canada is a national volunteer organization committed to reducing the burden of kidney disease.
Kidney School www.kidneyschool.org Kidney School is a site that provides interactive, web-based learning programs to help people learn what they need to know and understand about kidney disease.
Kidney Steps www.kidneysteps.com
Kidney Steps present a 5-step program to help you better your odds of avoiding and surviving kidney disease. The website was created by an Alport Syndrome patient.
Life Options www.lifeoptions.org Life Options provides a wide variety of educational materials related to kidney disease and information about current kidney research.
National Kidney Foundation www.kidney.org
The National Kidney Foundation is a comprehensive site providing information and resources, including patient and family education; kidney learning system; information on kidney donors and recipients; meetings and events; bulletin board for patients; and brochures on treatment, dialysis, hypertension, transplant, exercise, nutrition.
Renal Support Network www.rsnhope.org
The Renal Support Network is an organization that provides non-medical services to those affected by chronic kidney disease and strives to help patients develop their personal coping skills, special talents, and employability by educating and empowering them (and their family members) to take control of the course and management of their disease.