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January 2023 Newsletter

January 2023 Newsletter

Leadership Council Expansion, Upcoming Direct Connect Chat, and More! READ MORE
ASF LAUNCHES NEW NATURAL HISTORY STUDY

ASF LAUNCHES NEW NATURAL HISTORY STUDY

Patients needed: Share your data with NEPTUNE to advance Alport syndrome research. READ MORE
New Alport Patient Registry Now Enrolling

New Alport Patient Registry Now Enrolling

All Alport patients residing in the U.S. are encouraged to enroll today. READ MORE
Join Us: Direct Connect Meetings

Join Us: Direct Connect Meetings

Learn about upcoming virtual events! READ MORE

CLINICAL TRIALS

Learn about ongoing clinical trials open to Alport patients.

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“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.

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