Alport Syndrome Foundation - Hope, Action, Support

Patient Guide, treatment guidelines, genetic testing, family planning, support group & more.

Patient Education

PATIENTS/CAREGIVERS: Get involved by sharing your experiences & participate in projects supporting our community.

Patient Research Opportunities

Learn about current clinical trials exploring new treatments for Alport syndrome.

Clinical Trials

Featured Story

November 2024 Newsletter

New Clinical Trial Sites Open, Volunteer Spotlight, Annual Campaign Update, and More!

JOIN THE ASF ALPORT PATIENT REGISTRY

Events Calendar

Dec 06

ASF Emerging Leadership Council December Meeting

Dec 10 - Dec 12

Rare & Genetic Kidney Disease Drug Development Summit

Dec 19

ASF Board of Directors December Meeting

THERE IS GREAT REASON TO BE HOPEFUL ABOUT YOUR FUTURE!

Our mission is to improve the lives of people living with Alport syndrome through education, empowerment, advocacy, and direct investment in research.

LEARN ABOUT ALPORT SYNDROME FOUNDATION

“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.