Alport Syndrome Foundation - Hope, Action, Support

An organization led by & dedicated to
the Alport community of patients & families

Teens

Ages 13-18

Young Adults

Ages 19-29

Adults/Caregivers

Ages 30+ / Parents of All Ages

January 2023 Newsletter

Leadership Council Expansion, Upcoming Direct Connect Chat, and More! READ MORE

ASF LAUNCHES NEW NATURAL HISTORY STUDY

Patients needed: Share your data with NEPTUNE to advance Alport syndrome research. READ MORE

New Alport Patient Registry Now Enrolling

All Alport patients residing in the U.S. are encouraged to enroll today. READ MORE

Join Us: Direct Connect Meetings

Learn about upcoming virtual events! READ MORE

FOR MEDICAL PROFESSIONALS

FOR RESEARCHERS

CLINICAL TRIALS

Learn about ongoing clinical trials open to Alport patients.

“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.