You are not alone!
There are tens of thousands of people all over the world living satisfying, productive lives who also have this kidney disease.
YOU ARE NOT A “CARRIER”.
You are a patient and should be followed by a nephrologist and possibly treated to slow the progression of your disease. Some medical professionals may not be up to date with current research about women and Alport syndrome.
You can help your kidneys stay as healthy as possible
You can help your kidneys stay as healthy as possible with some nutrition and lifestyle choices recommended by medical professionals.
A double certified pediatric and adult nephrologist, and a certified mental health professional who is also an Alport patient, answered your questions on Sunday, August 8, 2021 as part of Alport Connect 2021.
In this Alport Connect 2020 recording, ASF Co-Founder and Past President Sharon Lagas discusses female Alport patient care with Lesley A. Inker, MD, MS, Erin McKelvey, OB/GYN, and Michelle Rheault, MD.