ASF DIRECTLY FUNDS RESEARCH
In support of its mission to improve the lives of those affected by Alport Syndrome, our Foundation directly funds research. Since 2007, ASF has invested more than $2 million in research projects. Learn more about our impact. In January 2021, ASF established a new Scientific Advisory Research Network (SARN) comprised of eight U.S. and international Alport syndrome researchers. The role of this group is to provide expert guidance to ASF on how to best achieve targeted research objectives.
PATIENT DATA COLLECTION REMAINS A PRIORITY
In 2022, ASF partnered with NEPTUNE to launch a Natural History Study. In March 2023, ASF relaunched our U.S. patient registry. Both of these efforts are critical to advancing Alport syndrome research.
REGISTER FOR RESEARCH PROGRAM UPDATES
To receive updates and announcements related to ASF’s Research Program, clinical studies, and the community of patients and families, register here and identify yourself as a researcher.