This page is designed to consolidate information from academic experts on the genetics, diagnosis, and treatment of Alport Syndrome.
Clinical Practice Guidelines
Clinical Practice Recommendations for the Treatment of Alport Syndrome – Alport Syndrome Research Collaborative (recommendations for pediatric patients)
Clinical Practice Recommendations – Synopsis for Families by Dr. Clifford Kashtan (simplified version of recommendations for pediatric patients)
Expert Guidelines for the Management of Alport Syndrome and Thin Basement Membrane Nephropathy (recommendations for adult patients)
International Research Workshops
Alport Syndrome and Kidney Failure, A Family Story (podcast – audio only)