Annual Campaign for Healthy Kidneys
The ASF Research Program is funded through donations made to the Annual Campaign for Healthy Kidneys, which is held each fall. Become a fundraiser or make a donation today toward this year’s campaign!
Free Continuing Medical Education Course
ASF is sponsoring a one-hour free continuing medical education (CME) course for medical professionals. The course will focus on the fundamentals of Alport syndrome, including diagnosis, treatment, and management of the disease. Watch for more information by year-end!
Announcing Research Funding
ASF, the Pedersen Family and the Kidney Foundation of Canada announced funding of $100,000 each for two Alport syndrome research projects.
Ask the Experts Webinar Series
ASF hosts a monthly webinar series where experts address topics of interest to the Alport syndrome community. Recordings of past webinars can be found on our website and the ASF YouTube channel.
Alport syndrome Research Studies
Recruiting for the ATHENA observational study conducted by Regulus Therapeutics is now closed. This study sought to learn more about the natural history of Alport syndrome. No medications were administered as part of the study.
The CARDINAL study is an interventional Phase 2/3 study conducted by Reata Pharmaceuticals to test the effectiveness of the drug bardoxolone methyl in treating chronic kidney disease caused by Alport syndrome. Initial CARDINAL Phase 2 data is available via Webex.
Phase 3 of CARDINAL is currently recruiting in the US. Additional international sites will be announced once they are ready for screening. Phase 3 is a double-blind placebo-controlled study.
The HERA study is an interventional Phase 2 clinical study conducted by Regulus Therapeutics. The study will evaluate the safety and effectiveness of an investigational drug called RG-012. The study is expected to begin recruiting in fall 2017.
ASTOR Patient Registry
Participating in the patient registry allows patients, family members, and physicians to be informed of new clinical studies and trials. Join today!
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