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ASF Community App – Welcome!

ASF Community Welcome Banner

What is the ASF Community App?

The free ASF Community app allows for year-long interactivity between Alport patients/family members, ASF staff, and visiting medical experts.

The app serves as the home of 1) the “ASF Community 24/7 Room” and 2) Alport Connect gatherings. Both in-app offerings require separate registration.

The ASF Community App is available for smartphone users and is also available as a browser-based experience. As a reminder, even if you download the ASF Community app, you will not have access to the interior “ASF Community 24/7 Room” and/or Alport Connect events without respective room/event registration.

How do I get request access to the “ASF Community 24/7 Room” inside the app?

The in-app “ASF Community 24/7 Room” is for Alport patients and family members-only, regardless of country, and is monitored by ASF staff to sustain this privacy. Users have the ability to quickly find and chat others facing similar life experiences via our color coded groups feature (post-transplant, experiencing hearing loss, parent of a patient etc.).

Patients and family members can request access to ASF Community by emailing ASF Staff with the subject line “ASF Community Access.” ASF Staff will then provide all the necessary information.

How do I request access to virtual Alport Connect meetings within the app?

Tickets for our virtual Alport Connect events will be available on our website.

Reminder: Even if you register for special in-app events, such as Alport Connect, you will not be able to access our interior “ASF Community 24/7 Room” without requesting separate access.

Is there a web browser version of ASF Community?

Yes! Current ASF Community users can access a browser version of the 24/7 Room by clicking this link. Intended for desktops, laptops, and tablets, the web version of the year-long “ASF Community 24/7 Room” requires your email and password for access to ensure privacy.