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Author: Kevin Schnurr

Join Us: Direct Connect Meetings

ASF invites you to join us for 60-minute, staff- and volunteer-moderated Direct Connect virtual meetings (held over Zoom) that provide important opportunities for patients and family members to meet others facing similar life circumstances, ask questions, identify areas of need, and help lay groundwork for future educational content. Topics will vary by month. Unless indicated […]

Patient Guide: By Patients for Patients

  March 14, 2024 Since the release of our Patient Guide in late 2021, we have seen many changes to the Alport syndrome landscape. Therefore, with the input of members of our Medical Advisory Committee, Emerging Leadership Council, and patients, we are proud to release our updated Patient Guide: By Patients for Patients. This newly […]