March 23, 2023 ASF is requesting U.S. patient submissions for the inaugural publication of Alport Odyssey, a zine exploring the Alport syndrome experience through the creative works of Alport patients. Alport Odyssey is a space for patients to explore their lived experiences with Alport Syndrome by sharing artistic representations of stories, lessons, and reflections with […]
February 25, 2022 On February 25th, the U.S. Food and Drug Administration (FDA) announced its decision not to approve a New Drug Application for the use of bardoxolone methyl as a treatment for Alport syndrome. Bardoxolone methyl was investigated for safety and efficacy in Alport patients through the CARDINAL Study, the first-ever clinical trial […]
