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Author: support-team

January 2022 Newsletter

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December 2021 Newsletter

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November 2021 Newsletter

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October 2021 Newsletter

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ASF is pleased to announce the addition of four ne

ASF is pleased to announce the addition of four new members to the Emerging Leadership Council (ELC); Ben Rosengart, Brett Raisman, Mack Bonebrake, and Rachel Denham.

All of these members have been significantly impacted by #Alportsyndrome and seek to use their unique skillsets to serve the community. As part of the ELC, they will help create patient resources, promote advocacy and awareness, support others in the community, and more!

The ELC was established in 2020 to ensure the voice of those in the 20-30 age range is well-represented in the foundation’s decision-making.

Patients in their 20s and 30s are encouraged to contact the ELC to share their stories, learn about relevant ASF resources, and become further engaged within the Alport community. To contact the ELC, please email info@alportsyndrome.org!

Way to go, Dan! Congrats for running the Marine Co

Way to go, Dan! Congrats for running the Marine Corps Marathon and raising $50,000 for Alport Syndrome Foundation! Together with other families like yours, we’re working to change the stories and outcomes for individuals living with Alport syndrome. We appreciate your dedication. For more information about our rare kidney disease and our Annual Campaign, visit our website (link in bio)!

The Paul Silver Enrichment Award cycle ends Octobe

The Paul Silver Enrichment Award cycle ends October 25th! Don’t forget to apply! Swipe to see the 2023 Award Recipients!

Learn more about the 2024 Paul Silver Enrichment A

Learn more about the 2024 Paul Silver Enrichment Award, open to U.S. Alport patients ages 18-24, at the link in our bio! Applications are due October 25th.

”Hi, everyone, my name is Rachel. And I am a recipient of the 2023 Paul Silver Enrichment Award, and I was 23 years old when I applied. I applied because I was also in the midst at the time of applying to graduate programs in genetic counseling, and I knew that this would be a great resource for me to have as I knew I’d have upcoming tuition payments once I started a graduate program. So that’s what I’ve done with the funds so far, and it has been great for me to use those to pay for the first semester’s tuition so that I can focus more so on what I need to be figuring out before I start school and all the studying I need to be doing, that I can focus more on those types of things.”

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