Kidneys

March 10 is World Kidney Day, a global awareness campaign to emphasize the importance of the two bean-shaped organs located in the back of our abdomens. The 2016 theme stresses the importance of early diagnosis and treatment of children with renal disease, a topic of particular interest to the Alport syndrome community.

Note: This blog entry was updated September 12, 2018. Those preparing for Hurricane Florence are strongly encouraged to visit the FEMA website and additional kidney-related emergency preparedness links at the conclusion of this post.   When emergencies strike, we often feel helpless. For patients with renal diseases like Alport syndrome and other conditions requiring special needs, natural disasters and other unexpected events can be especially traumatic.

Until recently most doctors thought that Alport syndrome was an untreatable disease. Although there is currently no treatment proven to prevent the development of kidney failure in people with Alport syndrome, early diagnosis is essential as there are medications to delay the progression of the disease.
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