Family Meetings

Alport Family Meetings

The Alport Family Meetings are a powerful patient engagement initiative for individuals and families.

These meetings provide the opportunity to:

  • Meet other patients and families affected by Alport syndrome
  • Get the latest research updates from leading experts
  • Learn more about disease management, available resources, and how to self advocate.

The two-day meetings provide vital information and connections for both newly diagnosed and seasoned patients and provide program tracks for parents/adults and one designed specifically and separately for teens and young adults. This track is facilitated by trained fellow young patients and patient mentors. We also have fun activities and childcare for children ages 5-12.

Join us for one of these upcoming Family Meetings!

2018 dates and locations will be announced soon.

This meeting was held at the University of Utah in July 2017.

This meeting was held at the University of Minnesota in October 2017.

You can find pictures from previous Family Meetings on Flickr.

National Sponsors:

Local Sponsors:

National and local sponsorship opportunities available!

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