Upcoming Events

``It is the most empowering, positive experience -
connecting with others (who are) dealing with the same things.``
- Former ACT Meet up Attendee

Join us for the next Alport Connect Together Meet up!
Register Now 
*Online Registration ends Thursday, September 27th. After Thursday attendees
may register onsite.

September 29 – 30, 2018 

University of Texas Southwestern
5323 Harry Hines Blvd, Dallas, TX 7530 

View Campus Parking/Address details here.


Book Your Hotel Room! Deadline to get the $139 rate is 5 pm CDT, September 5th,
You may access the site to book, modify, or cancel a reservation from now until September 30th.

  • Benefit from new connections
  • Gain educational insights
  • Be the first to receive patient and research updates

Need assistance with travel?

For the first time ever, ASF is proud to offer Travel Stipends for qualifying families. Travel stipends are available for families traveling more than 200 miles to attend the Miami meet up, a $100 per person travel stipend will be offered to help cover costs of travel with a maximum of $400 per family.

ASF’s regional meetings bring together those who have been recently diagnosed with Alport syndrome and those who have been managing the disease for many years. This year we’re bringing back our Program Tracks for parents/adults and for teens and young adults! Our young adult track is facilitated by trained, young patients and patient mentors. We’ll also have fun activities and childcare for children ages 5-12.

Don’t miss a one-of-a-kind opportunity to share information and strengthen our community of support. For more information visit the Family Meetings page of our website. Register here for the event.

Don‘t see an event in your area? Plan one! Contact events@alportsyndrome.org to add your event to this page.

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