Upcoming Events


Annual 5K for Healthy Kidneys

Mark your calendars for April 29th!

Each year, thousands of families find themselves facing uncertainty when their loved ones suddenly begin to experience changes in their kidneys, eyes and ears.

This 5K for Healthy Kidneys is a win-win for all participants. Enjoy the beautiful and historic Kiwanis Park while helping improve the lives of those who have Alport Syndrome and other chronic kidney disorders.

This year’s participants will receive a commemorative t-shirt, post-race refreshments, entertainment and a chance to win great door prizes. T-shirts and sizes are guaranteed only if registered by March 30, 2018. You must be present to win a door prize.

Next, Steps…

1) Register yourself or your team.

2) Invite your family, friends, and colleagues to participate/join!

3) Spread the word on social media and through email.

Last year, nearly 250 runners, walkers, vendors, volunteers and family members attended the race, helping raise more than $54,000 to help many who cannot afford the costs of their battle with Alport Syndrome. So, can we count on you in 2018?

YES, I want to register for the 5K.

NO, I  can’t make it to the 5K, but I want to fundraise for the cause.

``It is the most empowering, positive experience -
connecting with others (who are) dealing with the same things.``
- Former ACT Meet up Attendee

REGISTER NOW for the next Alport Connect Together Meet up!

  • Benefit from new connections
  • Gain educational insights
  • Be the first to receive patient and research updates

Need assistance with travel?

For the first time ever, ASF is proud to offer Travel Stipends for qualifying families. Travel stipends are available for families traveling more than 200 miles to attend the Miami meet up, a $100 per person travel stipend will be offered to help cover costs of travel with a maximum of $400 per family.

ASF’s regional meetings bring together those who have been recently diagnosed with Alport syndrome and those who have been managing the disease for many years. This year we’re bringing back our Program Tracks for parents/adults and for teens and young adults! Our young adult track is facilitated by trained, young patients and patient mentors. We’ll also have fun activities and childcare for children ages 5-12.

Don’t miss a one-of-a-kind opportunity to share information and strengthen our community of support. For more information visit the Family Meetings page of our website.

Don‘t see an event in your area? Plan one! Contact events@alportsyndrome.org to add your event to this page.

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