Upcoming Events

Alport Family Meeting

Saturday, October 7 – Sunday, October 8
Minneapolis, MN

This meeting provides the opportunity to:

  • Meet other patients and families affected by Alport syndrome
  • Get the latest research updates from leading experts
  • Learn more about disease management, available resources, and how to self advocate.

Separate tracks for parents/adults and teens/young adults, plus fun activities and childcare for children ages 5-12.

Register today to attend! Information on lodging, speakers and program agenda will be posted on the Family Meetings page.

Annual Campaign for Healthy Kidneys

Begins Monday, September 18

Mark your calendars! Start making plans now to be part of the annual fundraising campaign to support Alport syndrome research. You can fundraising online, via email or letter campaigns, or host an event.

Contact Campaign Manager Marci Panella if you have any questions.

Join Team ASF

Are you participating in an athletic event or other competition? Join Team ASF and help spread awareness and raise funds to support patients and families affected by Alport syndrome.

  1. Register for FREE to be part of Team ASF
  2. Raise $100 or more and receive a performance shirt and other goodies
  3. Wear your Team ASF shirt while competing in the event.


What is your passion? Join Team ASF today to create a fundraiser to help Alport syndrome families.

Don‘t see an event in your area? Plan one! Contact events@alportsyndrome.org to add your event to this page.

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