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january 2020
No Events
february 2020
No Events
march 2020
No Events
april 2020
No Events
may 2020
No Events
june 2020
No Events
july 2020
No Events
august 2020
No Events
september 2020
No Events
october 2020
No Events
november 2020
No Events
december 2020
No Events
ALPORT CONNECT 2023 IN-PERSON MEETING
October 7-8, 2023
You are invited to join us Saturday and Sunday, October 7 & 8, 2023 on the beautiful campus of the University of San Diego.
We are excited to see and connect with so many of you. The weekend will include educational sessions with medical experts, ample social time, a separate space and program for teens, and an additional one for children.
Please add these dates to your calendar so you can participate in our first in-person Alport Connect event in more than 3 years. We’ll share event details as they become available. Be sure to register as a Free Member of ASF to receive event updates.
ALPORT CONNECT 2022 MEETING
August 6-7, 2022
The all-virtual Alport Connect 2022 event was held Saturday, August 6th and Sunday, August 7th.
Click Here to View the Archived Agenda
The 2022 event was hosted inside the ASF Community app.
Thank you to all those who participated!
Thank you to our Alport Connect 2022 sponsors:
ALPORT CONNECT 2021 MEETING
With safety the utmost priority, ASF announced the return of our virtual-only Alport Connect weekend: Saturday, August 7th and Sunday, August 8th, 2021.
Thank you to all those who attended and participated in the 2021 gathering!
The no-charge, virtual-only event (for those age 18+) was open to the global Alport Community of patients, affected families/caregivers, and medical professionals. Like summer 2020, the event was hosted in the ASF Community app. You can view recordings of the 2021 live weekend panels on our YouTube Channel.
Thank you to our Alport Connect 2021 sponsors:
ALPORT CONNECT 2020 MEETING
Due to COVID-19, the 2020 Alport Connect Meeting was held virtually for the first time via the ASF Community app.
Some examples of what attendees said about the 2020 Virtual Alport Connect Meeting:
“It’s been a weird year but being able to connect virtually to others with Alport syndrome was amazing!”
“Clear, concise information that balanced both the medical aspect of Alport syndrome as well as the emotional aspect.”
“I learned so much! I really enjoyed hearing everyone’s personal experiences. I feel more informed than ever thanks to the doctors’ presentations.”
“I really feel that we took away new and valuable information from each session.”
“I’ve been following the Foundation since the beginning, the event honestly made me feel proud and grateful, it was so well done.”
In-Person Meetings (2010-2019)
Crucial Patient/Caregiver, Physician, & Researcher Gatherings
ASF hopes to safely resume in-person meetings in 2023.
- Adult/Caregivers
- Teens (ages 13-18)
- Healthy Happy Kidney Program (Ages 9-12)
- “Next Level” programming for our returning patients and caregivers
BENEFITS OF ALPORT CONNECT WEEKENDS
- Meeting other families that relate to your experiences
- Understanding the latest research from leading experts
- Learning more about disease management, available resources, and how to self-advocate.
- Socializing and building bonds with families you will reach to for support over time.
“I would recommend attending the Alport Connect meeting because it’s good to know people who are going through the same thing you are. It was a lot of fun and easy to take in information.” — Teen Program Participant, Cleveland 2019
