January 2020
No Events
February 2020
No Events
March 2020
No Events
April 2020
No Events
May 2020
No Events
June 2020
No Events
July 2020
No Events
August 2020
No Events
September 2020
No Events
October 2020
No Events
November 2020
No Events
December 2020
No Events
ALPORT CONNECT 2025 MEETING
Alport Connect 2025 will be held in the Chicagoland area on Saturday, July 19th and Sunday, July 20th at the Hilton Chicago/Oak Brook Hills Resort & Conference Center in Oak Brook, Illinois.
Learn more about the event and reserve your free e-tickets!
Update as of 3/14/2025:
Please note that our reserved room block at Hilton Chicago/Oak Brook Hills Resort is now sold out. If you would like to be placed on a waiting list should a room open up, please email us at [email protected]. You can also click here to view our Logding Overview document, which contains alternative hotel options nearby the event.
ALPORT CONNECT 2024 MEETING
ASF’s patient and family meeting, Alport Connect Denver, was held at Gaylord Rockies Resort & Convention Center in Colorado on July 27-28th. Click here to view an archived copy of the Adult Program agenda. You can also learn about our event speakers and facilitators.
Thank you to our event sponsors, volunteers, and attendees for a truly memorable weekend. Want to be the first to learn about upcoming events? Register with ASF!
Thank you to our Alport Connect 2024 sponsors:
ALPORT CONNECT 2023 MEETING
ASF’s annual patient and family meeting, Alport Connect, returned in person for the first time in 3 years. Thank you to all those who joined us in San Diego! Learn about this year’s guest speakers at this link.
Saturday, October 7th was a free ticketed indoors event at the University of San Diego:
- Saturday’s educational sessions were held on the campus of the University of San Diego with three separate, simultaneous programs: Adults (ages 18+), Teens (ages 13-18), and Kids (ages 7-12). You can learn about our program facilitators here.
Sunday, October 8th did not require a ticket and was held at a local beach.
Watch our closed-captioned Alport Connect 2023 recap video below.
A full playlist of event videos can be accessed here.
Thank you to our Alport Connect 2023 sponsors:
ALPORT CONNECT 2022 MEETING
The all-virtual Alport Connect 2022 event was held Saturday, August 6th and Sunday, August 7th.
Click Here to View the Archived Agenda
The 2022 event was hosted inside the ASF Community app.
Thank you to all those who participated!
Thank you to our Alport Connect 2022 sponsors:
ALPORT CONNECT 2021 MEETING
With safety the utmost priority, ASF announced the return of our virtual-only Alport Connect weekend: Saturday, August 7th and Sunday, August 8th, 2021.
Thank you to all those who attended and participated in the 2021 gathering!
The no-charge, virtual-only event (for those age 18+) was open to the global Alport Community of patients, affected families/caregivers, and medical professionals. Like summer 2020, the event was hosted in the ASF Community app. You can view recordings of the 2021 live weekend panels on our YouTube Channel.
Thank you to our Alport Connect 2021 sponsors:
ALPORT CONNECT 2020 MEETING
Due to COVID-19, the 2020 Alport Connect Meeting was held virtually for the first time via the ASF Community app.
Some examples of what attendees said about the 2020 Virtual Alport Connect Meeting:
“It’s been a weird year but being able to connect virtually to others with Alport syndrome was amazing!”
“Clear, concise information that balanced both the medical aspect of Alport syndrome as well as the emotional aspect.”
“I learned so much! I really enjoyed hearing everyone’s personal experiences. I feel more informed than ever thanks to the doctors’ presentations.”
“I really feel that we took away new and valuable information from each session.”
“I’ve been following the Foundation since the beginning, the event honestly made me feel proud and grateful, it was so well done.”
In-Person Meetings (2010-2019)
Crucial Patient/Caregiver, Physician, & Researcher Gatherings
ASF hopes to safely resume in-person meetings in 2023.
- Adult/Caregivers
- Teens (ages 13-18)
- Healthy Happy Kidney Program (Ages 9-12)
- “Next Level” programming for our returning patients and caregivers
BENEFITS OF ALPORT CONNECT WEEKENDS
- Meeting other families that relate to your experiences
- Understanding the latest research from leading experts
- Learning more about disease management, available resources, and how to self-advocate.
- Socializing and building bonds with families you will reach to for support over time.
“I would recommend attending the Alport Connect meeting because it’s good to know people who are going through the same thing you are. It was a lot of fun and easy to take in information.” — Teen Program Participant, Cleveland 2019
Click below for images from Alport Connect Denver.
Click below for images from prior Alport Connect in-person events.
January 2020
No Events
February 2020
No Events
March 2020
No Events
April 2020
No Events
May 2020
No Events
June 2020
No Events
July 2020
No Events
August 2020
No Events
September 2020
No Events
October 2020
No Events
November 2020
No Events
December 2020
No Events
ALPORT CONNECT 2024 MEETING
ASF’s patient and family meeting, Alport Connect Denver, was held at Gaylord Rockies Resort & Convention Center in Colorado on July 27-28th. Click here to view an archived copy of the Adult Program agenda. You can also learn about our event speakers and facilitators.
Thank you to our event sponsors, volunteers, and attendees for a truly memorable weekend. Want to be the first to learn about upcoming events? Register with ASF!
Thank you to our Alport Connect 2024 sponsors:
ALPORT CONNECT 2023 MEETING
ASF’s annual patient and family meeting, Alport Connect, returned in person for the first time in 3 years. Thank you to all those who joined us in San Diego! Learn about this year’s guest speakers at this link.
Saturday, October 7th was a free ticketed indoors event at the University of San Diego:
- Saturday’s educational sessions were held on the campus of the University of San Diego with three separate, simultaneous programs: Adults (ages 18+), Teens (ages 13-18), and Kids (ages 7-12). You can learn about our program facilitators here.
Sunday, October 8th did not require a ticket and was held at a local beach.
Watch our closed-captioned Alport Connect 2023 recap video below.
A full playlist of event videos can be accessed here.
Thank you to our Alport Connect 2023 sponsors:
ALPORT CONNECT 2022 MEETING
The all-virtual Alport Connect 2022 event was held Saturday, August 6th and Sunday, August 7th.
Click Here to View the Archived Agenda
The 2022 event was hosted inside the ASF Community app.
Thank you to all those who participated!
Thank you to our Alport Connect 2022 sponsors:
ALPORT CONNECT 2021 MEETING
With safety the utmost priority, ASF announced the return of our virtual-only Alport Connect weekend: Saturday, August 7th and Sunday, August 8th, 2021.
Thank you to all those who attended and participated in the 2021 gathering!
The no-charge, virtual-only event (for those age 18+) was open to the global Alport Community of patients, affected families/caregivers, and medical professionals. Like summer 2020, the event was hosted in the ASF Community app. You can view recordings of the 2021 live weekend panels on our YouTube Channel.
Thank you to our Alport Connect 2021 sponsors:
ALPORT CONNECT 2020 MEETING
Due to COVID-19, the 2020 Alport Connect Meeting was held virtually for the first time via the ASF Community app.
Some examples of what attendees said about the 2020 Virtual Alport Connect Meeting:
“It’s been a weird year but being able to connect virtually to others with Alport syndrome was amazing!”
“Clear, concise information that balanced both the medical aspect of Alport syndrome as well as the emotional aspect.”
“I learned so much! I really enjoyed hearing everyone’s personal experiences. I feel more informed than ever thanks to the doctors’ presentations.”
“I really feel that we took away new and valuable information from each session.”
“I’ve been following the Foundation since the beginning, the event honestly made me feel proud and grateful, it was so well done.”
In-Person Meetings (2010-2019)
Crucial Patient/Caregiver, Physician, & Researcher Gatherings
ASF hopes to safely resume in-person meetings in 2023.
- Adult/Caregivers
- Teens (ages 13-18)
- Healthy Happy Kidney Program (Ages 9-12)
- “Next Level” programming for our returning patients and caregivers
BENEFITS OF ALPORT CONNECT WEEKENDS
- Meeting other families that relate to your experiences
- Understanding the latest research from leading experts
- Learning more about disease management, available resources, and how to self-advocate.
- Socializing and building bonds with families you will reach to for support over time.
“I would recommend attending the Alport Connect meeting because it’s good to know people who are going through the same thing you are. It was a lot of fun and easy to take in information.” — Teen Program Participant, Cleveland 2019
Click below for images from Alport Connect Denver.
Click below for images from prior Alport Connect in-person events.