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Zulujanuary 2020
No Events
february 2020
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march 2020
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april 2020
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may 2020
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june 2020
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july 2020
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august 2020
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september 2020
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october 2020
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november 2020
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december 2020
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ALPORT CONNECT 2022 MEETING
August 6-7, 2022
Free tickets for the all-virtual Alport Connect 2022 event (Saturday, August 6th and Sunday, August 7th) are now available! This event is for ages 18+.
Welcome Packets and/or an age-appropriate children’s gift will be sent to eligible ticket holders.
Click Here to Get Your Free Tickets
The 2022 event will be hosted inside the ASF Community app. A weekend agenda is forthcoming.
Thank you to all those who participated in our event preferences survey which helped influence the format of this year’s meeting. Your safety remains our top priority.
Thank you to our Alport Connect 2022 sponsors to date:
ALPORT CONNECT 2021 MEETING
With safety the utmost priority, ASF announced the return of our virtual-only Alport Connect weekend: Saturday, August 7th and Sunday, August 8th, 2021.
Thank you to all those who attended and participated in the 2021 gathering!
The no-charge, virtual-only event (for those age 18+) was open to the global Alport Community of patients, affected families/caregivers, and medical professionals. Like summer 2020, the event was hosted in the ASF Community app. You can view recordings of the 2021 live weekend panels on our YouTube Channel.
Thank you to our Alport Connect 2021 sponsors:
ALPORT CONNECT 2020 MEETING
Due to COVID-19, the 2020 Alport Connect Meeting was held virtually for the first time via the ASF Community app.
Some examples of what attendees said about the 2020 Virtual Alport Connect Meeting:
“It’s been a weird year but being able to connect virtually to others with Alport syndrome was amazing!”
“Clear, concise information that balanced both the medical aspect of Alport syndrome as well as the emotional aspect.”
“I learned so much! I really enjoyed hearing everyone’s personal experiences. I feel more informed than ever thanks to the doctors’ presentations.”
“I really feel that we took away new and valuable information from each session.”
“I’ve been following the Foundation since the beginning, the event honestly made me feel proud and grateful, it was so well done.”
In-Person Meetings (2010-2019)
Crucial Patient/Caregiver, Physician, & Researcher Gatherings
ASF hopes to safely resume in-person meetings in 2023.
- Adult/Caregivers
- Teens (ages 13-18)
- Healthy Happy Kidney Program (Ages 9-12)
- “Next Level” programming for our returning patients and caregivers
BENEFITS OF ALPORT CONNECT WEEKENDS
- Meeting other families that relate to your experiences
- Understanding the latest research from leading experts
- Learning more about disease management, available resources, and how to self-advocate.
- Socializing and building bonds with families you will reach to for support over time.
“I would recommend attending the Alport Connect meeting because it’s good to know people who are going through the same thing you are. It was a lot of fun and easy to take in information.” — Teen Program Participant, Cleveland 2019
