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July 27-28, 2024

ASF’s patient and family meeting, Alport Connect will be held at Gaylord Rockies Resort & Convention Center in Colorado.

As of March 26, 2024, this year’s event is sold out and there is a waitlist for tickets and partial travel reimbursement opportunities. Email ASF Staff for additional details.

View our partial travel reimbursement document.

View our lodging options document.

Click below for our event page with full details about the two-day in-person only gathering.


Click Here for Full Event Details


ASF’s annual patient and family meeting, Alport Connect, returned in person for the first time in 3 years. Thank you to all those who joined us in San Diego! Learn about this year’s guest speakers at this link.

Saturday, October 7th was a free ticketed indoors event at the University of San Diego:

  • Saturday’s educational sessions were held on the campus of the University of San Diego with three separate, simultaneous programs: Adults (ages 18+), Teens (ages 13-18), and Kids (ages 7-12). You can learn about our program facilitators here.

Sunday, October 8th did not require a ticket and was held at a local beach.

Thank you to our Alport Connect 2023 sponsors:


The all-virtual Alport Connect 2022 event was held Saturday, August 6th and Sunday, August 7th.

Click Here to View the Archived Agenda

The 2022 event was hosted inside the ASF Community app.

Thank you to all those who participated!

Thank you to our Alport Connect 2022 sponsors:


With safety the utmost priority, ASF announced the return of our virtual-only Alport Connect weekend: Saturday, August 7th and Sunday, August 8th, 2021.

Thank you to all those who attended and participated in the 2021 gathering!

The no-charge, virtual-only event (for those age 18+) was open to the global Alport Community of patients, affected families/caregivers, and medical professionals. Like summer 2020, the event was hosted in the ASF Community app. You can view recordings of the 2021 live weekend panels on our YouTube Channel.

Thank you to our Alport Connect 2021 sponsors:


Due to COVID-19, the 2020 Alport Connect Meeting was held virtually for the first time via the ASF Community app.

Some examples of what attendees said about the 2020 Virtual Alport Connect Meeting:

“It’s been a weird year but being able to connect virtually to others with Alport syndrome was amazing!”

“Clear, concise information that balanced both the medical aspect of Alport syndrome as well as the emotional aspect.”

“I learned so much! I really enjoyed hearing everyone’s personal experiences. I feel more informed than ever thanks to the doctors’ presentations.”

“I really feel that we took away new and valuable information from each session.”

“I’ve been following the Foundation since the beginning, the event honestly made me feel proud and grateful, it was so well done.”

In-Person Meetings (2010-2019)

Crucial Patient/Caregiver, Physician, & Researcher Gatherings

ASF hopes to safely resume in-person meetings in 2023.

  • Adult/Caregivers
  • Teens (ages 13-18)
  • Healthy Happy Kidney Program (Ages 9-12)
  • “Next Level” programming for our returning patients and caregivers


  • Meeting other families that relate to your experiences
  • Understanding the latest research from leading experts
  • Learning more about disease management, available resources, and how to self-advocate.
  • Socializing and building bonds with families you will reach to for support over time.

“I would recommend attending the Alport Connect meeting because it’s good to know people who are going through the same thing you are. It was a lot of fun and easy to take in information.”Teen Program Participant, Cleveland 2019

Watch our closed-captioned Alport Connect 2023 recap video below.

A full playlist of event videos can be accessed here.

Click below for images from prior Alport Connect in-person events.

We Hope to See You In Person Soon!

Until then, watch our 2023 event video (at left) and check out some of our prior meeting images on our Flickr Account.