ALPORT CONNECT 2023 IN-PERSON MEETING
OCT. 7-8, 2023
ASF’s annual patient and family meeting, Alport Connect, returned in person for the first time in 3 years. Thank you to all those who joined us in San Diego! Learn about this year’s guest speakers at this link.
Saturday, October 7th was a free ticketed indoors event at the University of San Diego:
- Saturday’s educational sessions were held on the campus of the University of San Diego with three separate, simultaneous programs: Adults (ages 18+), Teens (ages 13-18), and Kids (ages 7-12). You can learn about our program facilitators here.
Sunday, October 8th did not require a ticket and was held at a local beach.
ALPORT CONNECT 2022 MEETING
Thank you to our Alport Connect 2022 sponsors:
ALPORT CONNECT 2021 MEETING
With safety the utmost priority, ASF announced the return of our virtual-only Alport Connect weekend: Saturday, August 7th and Sunday, August 8th, 2021.
Thank you to all those who attended and participated in the 2021 gathering!
The no-charge, virtual-only event (for those age 18+) was open to the global Alport Community of patients, affected families/caregivers, and medical professionals. Like summer 2020, the event was hosted in the ASF Community app. You can view recordings of the 2021 live weekend panels on our YouTube Channel.
Thank you to our Alport Connect 2021 sponsors:
ALPORT CONNECT 2020 MEETING
Due to COVID-19, the 2020 Alport Connect Meeting was held virtually for the first time via the ASF Community app.
Some examples of what attendees said about the 2020 Virtual Alport Connect Meeting:
“It’s been a weird year but being able to connect virtually to others with Alport syndrome was amazing!”
“Clear, concise information that balanced both the medical aspect of Alport syndrome as well as the emotional aspect.”
“I learned so much! I really enjoyed hearing everyone’s personal experiences. I feel more informed than ever thanks to the doctors’ presentations.”
“I really feel that we took away new and valuable information from each session.”
“I’ve been following the Foundation since the beginning, the event honestly made me feel proud and grateful, it was so well done.”
In-Person Meetings (2010-2019)
Crucial Patient/Caregiver, Physician, & Researcher Gatherings
ASF hopes to safely resume in-person meetings in 2023.
BENEFITS OF ALPORT CONNECT WEEKENDS