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Alport Syndrome: In the News



Searching for a chance at a better life…
The Thomasville Times. October 25, 2023

Mom using billboards to find kidney donor for son
FOX19. October 16, 2023

Friend donates kidney to fellow Long Island lifeguard; “A beautiful example for all of humankind”
CBS New York. August 24, 2023

Welsh transplant football team to hold family fun day in Swansea
In Your Area. August 23, 2023

Chris Klug Foundation award recipients encourage organ donation
The Sopris Sun. July 26, 2023

4 Green Country Brothers All Have Same Rare Condition; 2 Looking for Kidney Donors
News9. July 14, 2023

‘Hero wanted’: Man who gave kidney to wife leads search for new donor
NBC10 Boston. July 6, 2023

Young Local Pilot With Rare Genetic Disease In Need of Kidney Donor 
Ledger Dispatch. May 7, 2023

“We’re just looking for the day when we can celebrate all this”: Traveling nurse needs new kidney 
WTOL11. April 6, 2023

Op-Ed: Living kidney donation is a life-affirming experience 
The Northern Light. April 5, 2023

Steinbach man still searching for living kidney donor after three years
Steinbach Online. March 22, 2023

New organ gives young man new hope
Moscow-Pullman Daily News. January 3, 2023



‘I found a match’: Ottawa mom finds kidney donor after CTV News Ottawa story
iHeartRADIO. December 15, 2022

Rangers fan receives shock Ibrox invite from hero goalie Allan McGregor after kidney transplant
Daily Record. October 5, 2022

Industry bands together to find recruiting vet Terri Passick a kidney donor
Medical Marketing and Media. September 20, 2022

Deaf dog is adopted by Michigan teen with hearing loss — now they’re ‘inseparable’
Fox News Digital. September 15, 2022

Local firefighter donates kidney to college student
The Cullman Tribune. September 14, 2022

Northborough native seeks kidney: ‘I want to be there for [my daughter]’
Community Advocate. August 31, 2022

Brothers with ties to Dayton seeking living kidney donors
Dayton Daily News. August 8, 2022

Kidney patient has life saved by one of his friends
Plymouth Live. June 28, 2022

An old friend donates kidney to Valley woman
ABC15 Arizona. April 29, 2022

How a Baylor history class saved a BU student’s life
BaylorProud. April 14, 2022

Medicine Hat mom looking for living kidney donor
CHATNewsToday. April 5, 2022

For one northern Minnesota family, the gift of kidney donation keeps on giving
StarTribune. March 25, 2022

One of world’s longest surviving transplant patients marks 50 years with donated kidney
The Mirror. January 23, 2022

Valley rocker writes children’s books during pandemic
ABC15 Arizona. January 4, 2022




Bringing visibility to a rare disease
Oregon Health & Science University Foundation. December 21, 2021

Scottish Women in Sport Awards – our eight finalists
Scottish Athletics. November 19, 2021

A love story: One year after they met, his husband became his kidney donor
USA Today. October 16, 2021

Siblings with Alport Syndrome plead for kidney donors
News Channel 5 Nashville. September 20, 2021

A perfect match: Russiaville native receives kidney transplant from husband
Kokomo Tribune. August 31, 2021

‘I really want him to have a long life with me’: The love story behind a Denver man giving a kidney to his new husband
The Denver Channel. August 12, 2021

Sisters receive kidney transplant hoping their brother can, too
FOX 44 News. August 4, 2021

‘Jimmy’s Kidney Crew’ to host fundraiser to support family in need
Beaver County Times. August 4, 2021

Are you a match? Ottawa mother urgently seeks living kidney donor
CTV News. July 21, 2021

Organ donors a ‘ray of hope’ for people on transplant waiting lists
Irish Examiner. April 1, 2021

Rare Leader: Lisa Bonebrake, Executive Director, Alport Syndrome Foundation
Global Genes. March 25, 2021

How Kevin Schnurr Honors His Gift of a New Kidney
CareDx. February 3, 2021

Ione Pilot Living Proof of Mind Over Matter
Ledger Dispatch. February 3, 2021

Shae Hutchinson discusses his recovery after kidney transplant
Norwich City Football Club. January 18, 2021

My Cousin Gave Me Her Kidney—And Saved My Life
Reader’s Digest, Canada. January 14, 2021

Unsplash Typewriter



People in Your Neighborhood: Grant Bonebrake champions those with rare diseases and wins national award
PB Monthly. December 29, 2020

Norwich starlet Shae Hutchinson receives message of support from Eric Abidal after undergoing kidney transplant, with Barcelona legend – who had a liver operation during his playing career – sending ‘strength and courage’
Daily Mail Online. December 17, 2020

Man receives kidney from a friend who ‘never had a doubt’ she would be a match
The Catholic Spirit. November 30, 2020

Holidays are giving time for St. Clair Twp. police
The Review. November 27, 2020

Teen finds kidney donor after long search during pandemic
CTV News. November 5, 2020

Fife man thanks dad for the gift of life after successful kidney transplant
The Courier. November 2, 2020.

HELP ME HAYLEY: Colfax family moving to Texas in hopes of better odds for life-saving transplants
KHQ. July 20, 2020

Local woman urges organ donations after major decline

KSNT. April 13, 2020

5K for Healthy Kidneys set for April 5 in Crown Point

PB Monthly. March 3, 2020

The smiling Waltham Abbey boy with a rare kidney disease who ‘can’t understand why he’s in pain

Herts Live. March 3, 2020

Winter chill funds summer thrills at Camp Sunshine

Portland Press Herald. March 3, 2020

Norwich youngster Shae Hutchinson vows kidney transplant won’t end his career
Skye Sports. February 25, 2020

Living and thriving despite disease

The Daily Independent. February 22, 2020

Shae Hutchinson’s story: Under-23s forward on his comeback from a kidney transplant
Norwich City Football Club. February 17, 2020



Kidney donor: I would want someone to do it for my child
Norwich Bulletin. July 11, 2019

Where kidney transplants are a family heritage
Boston Globe. January 13, 2019