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Click here to read about the September 2022 International Workshop on Alport Syndrome.

Alport Foundation of Australia

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[email protected]

Alport Syndrome.ca (Canada)

Visit Website
[email protected]

Alport Syndrome Parent Association (China)

[email protected]

AIRG — France

[email protected]

Alport Support Group (Germany)

Visit Website
[email protected]

Israel Alport Foundation (IAF)

[email protected]

Patient groups are beginning to form in Argentina, Netherlands, and Spain. To be connected with the local organizer, please contact us.

Aware of another patient group in the world that is not listed here? Please let us know! Contact us with information.

Watch highlights from the October 2019 International workshop on Alport Syndrome, Siena, Italy.