CONNECT ON FACEBOOK
The Alport Syndrome Facebook Support Group page is 3,500+ patients strong (as of April 2022), and moderated by experienced and knowledgeable patient ambassadors and staff. This is a remarkable place to ask questions, receive valuable feedback, and learn from shared experiences. Request to join today.
PATIENT GUIDE AND WEBSITE RESOURCES
CONNECT WITH OTHER FAMILIES
Annual Alport Connect meetings bring together patients, families and medical experts for a weekend of learning and socializing with others who share similar experiences. Connecting virtually/in person with other patient families, getting your questions answered by medical experts, empowering yourself with knowledge and creating a network of support can be the best gift you give yourself and your family.