CONNECT ON FACEBOOK
The Alport Syndrome Facebook Support Group page is 3,900+ patients strong (as of March 2023),and moderated by experienced and knowledgeable patient ambassadors and staff. This is a remarkable place to ask questions, receive valuable feedback, and learn from shared experiences. Request to join today.
EDUCATIONAL GUIDES, VIDEOS, & WEBSITE RESOURCES
Use the search function to check out our website’s resources including treatment, and genetics, and support related to hearing loss, eye abnormalities, the renal diet, and much more. If you have suggestions for additional content for this site, be sure to contact us.
JOIN OUR EFFORTS
CONNECT WITH OTHER PATIENTS, FAMILIES
Annual Alport Connect meetings bring together patients, families, and medical experts for a weekend of learning and socializing with others who share similar experiences. Connecting virtually/in person with other patient families, getting your questions answered by medical experts, empowering yourself with knowledge and creating a network of support can be the best gift you give yourself and your family.
Additionally, ASF host frequent virtual Direct Connect meetings throughout the year. These free meetings are topic-based and require pre-registration. Learn more by following the link below.