YOU ARE NOT ALONE!
There are tens of thousands of families all over the world living satisfying, productive lives that also have this kidney disease. You can join our community and receive regular updates, news and event information by registering here:
LEARN YOUR GENETIC TYPE
An international group of medical experts created recommended guidelines for treatment. Our disease is rare, but you can empower yourself and your doctor by getting familiar with the guidelines.
THERE IS REASON TO BE HOPEFUL!
There is great reason to be hopeful about the future! Learn about medical research and clinical trials working towards better treatments and possible cures for Alport Syndrome. One of the best ways patients can help with research is to enroll in the patient registry: NKF Patient Network – Alport Syndrome.