Alport Syndrome Foundation - Hope, Action, Support

An organization led by & dedicated to
the Alport community of patients & families

Teens

Ages 13-18

Young Adults

Ages 19-29

Adults/Caregivers

Ages 30+ / Parents of All Ages

April 2025 Newsletter

Alport Awareness Month, New Pediatric Resource, Clinical Trial Update, and More! READ MORE

ALPORT CONNECT 2025 MEETING

May Direct Connect

Alport Women’s Health Tuesday, May 20th at 7:00pm ET / 6:00pm CT / 5:00pm MT / 4:00pm PT READ MORE

JOIN THE ASF ALPORT PATIENT REGISTRY

Enrollment is the most important research step we can take as a patient community. READ MORE

FOR MEDICAL PROFESSIONALS

FOR RESEARCHERS & PHARMA INDUSTRY

CLINICAL TRIALS

Learn about ongoing clinical trials open to Alport patients.

“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.

Follow @alportsyndromefndn

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