Having been affected by the impacts of Alport syndrome for the bulk of her life, Amy is proud to serve on the Board of Directors (after previously serving as member of the Emerging Leadership Council) to bring her passion for education and providing support to patients and their families. At the age of 5, her father went into end-stage renal disease and was given the second chance of life through kidney transplant, thanks to his father. In Spring of 2021, Amy and her oldest son, Ben, were diagnosed with Alport syndrome and began treatment. She has watched the impact of the disease on her father, and has recently navigated the diagnosis on herself and her son, and believes she can use her personal experience with the disease to positively impact others in similar situations. Specifically, it is Amy’s goal to leverage her experience and education as an Elementary Education teacher to ensure families dealing with an Alport diagnosis have the information, support, and resources necessary to take action on their diagnosis and maintain a positive outlook for the bright future they have.