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News & Announcements

re: FDA Decision on Bardoxolone Methyl

                                                                                                                        February 25, 2022 On February 25th, the U.S. Food and Drug Administration (FDA) announced its decision not to approve a New Drug Application for the use of bardoxolone methyl as a treatment for Alport syndrome. Bardoxolone methyl was investigated for safety and efficacy in Alport patients through the CARDINAL Study, the first-ever clinical trial […]

Join Us: Direct Connect Meetings

ASF invites you to join us for 60-minute, staff- and volunteer-moderated Direct Connect virtual meetings (held over Zoom) that provide important opportunities for patients and family members to meet others facing similar life circumstances, ask questions, identify areas of need, and help lay groundwork for future educational content. Topics will vary by month. Unless indicated […]

Patient Guide: By Patients for Patients

November 22, 2021 With the guidance of Medical Advisory Committee members, ASF’s Emerging Leadership Council is pleased to share a brand new, downloadable Patient Guide: By Patients for Patients. This new resource includes an up-to-date overview of diagnosis, disease symptoms, current treatment recommendations based on research, types of health care providers that may be helpful, and […]