Select Page

Patient Guide: By Patients for Patients


March 14, 2024

Since the release of our Patient Guide in late 2021, we have seen many changes to the Alport syndrome landscape. Therefore, with the input of members of our Medical Advisory Committee, Emerging Leadership Council, and patients, we are proud to release our updated Patient Guide: By Patients for Patients.

This newly updated resource includes an up-to-date overview of diagnosis, disease symptoms, current treatment recommendations based on research, types of health care providers that may be helpful, and more.

Download the Revised Patient Guide in English below.



Download the March 2024 Patient Guide

Descarga la Guรญa del Paciente en Espaรฑol 2021