Announcements

Click here for our full list of announcements and current Alport syndrome research studies.

Events

For more details about the Alport Family Meetings and other events click below.

Stories and Videos

Individuals and families affected by Alport syndrome are not alone. Click to read stories from others or to share your own.

ABOUT US

The Alport Syndrome Foundation is the leading non-profit organization in the US serving and giving a voice to the Alport syndrome community...

RESEARCH

Since 2010, ASF and its partners have funded more than $2 million in Alport syndrome research....

CONNECT

Interact with other members of the Alport syndrome community virtually and/or in person...

RESOURCES

Explore online resources to help individuals and families affected by Alport syndrome...

ALPORT SYNDROME

Alport syndrome is a hereditary condition that affects the kidneys, ears, and eyes...

CONTACT US

Contact the Alport Syndrome Foundation here....

Frequently Asked Questions

Click to view the list of the most Frequently Asked Questions (FAQs).

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