Thank you for visiting the Alport Syndrome Foundation website. This site is designed for patients and families affected by Alport Syndrome, a genetic kidney disease. It is our goal to provide a central location for information about this disease, to create an opportunity to meet and talk to other families who are dealing with Alport Syndrome, and to support research aimed at curing the disease. read more
HEAR FROM THE EXPERTS
Long-term Management of Pediatric Alport Syndrome Patients click here
Presentations from the 2010 Alport Syndrome Symposium for Researchers, Physicians and Families in NY click here
Presentations from the 2012 Alport Syndrome Family Conference in MN¬†¬†click here
Clinical practice recommendations for the treatment of people with Alport Syndrome¬† click here
VIDEOS & STORIES
ASF On CBS Radio ‚Äď April 7, 2013 click here
ASF On Arizona Midday ‚Äď March 14, 2013 click here
2012 Alport Syndrome Family Conference Video¬†click here
The Alport Syndrome Story Video¬†click here
Join our Family Stories¬† click here
The 2013 Annual Campaign was a great success, with over $100,000 raised for Alport Syndrome research.¬† ASF total fundraising has now exceeded $1 million! Thank you to all the campaigners and donors who made this possible.
NEW¬†‚Äď¬† ASF is pleased to announce the winners of the 2013 Paul Silver Tribute Award.¬† Read their essays here.
Have you seen the latest ASF newsletter? click here
Create your own online fundraising page using our new online site click here
Purchase ASF necklaces and key chains from My Wildflower Jewelry and raise funds and awareness click here
Sell or shop on eBay and a portion of the sale benefits ASF. click here
HELP WITH RESEARCH
Help researchers learn more about AS. Join the Alport Syndrome Treatments and Outcomes Registry! click here
¬†Click here to read about ASF-funded research projects.