New podcast on Alport Syndrome. Listen Now!
HEAR FROM THE EXPERTS
Long-term Management of Pediatric Alport Syndrome Patients click here
Presentations from the 2010 Alport Syndrome Symposium for Researchers, Physicians and Families in NY click here
Presentations from the 2012 Alport Syndrome Family Conference in MNÂ Â click hereClinical practice recommendations for the treatment of people with Alport SyndromeÂ click here
VIDEOS & STORIES
ASF On CBS Radio â€“ April 7, 2013 click here
ASF On Arizona Midday â€“ March 14, 2013 click here
2012 Alport Syndrome Family Conference VideoÂ click here
The Alport Syndrome Story VideoÂ click here
Join our Family StoriesÂ click here
Join the 2014 Annual Campaign for Healthy Kidneys now by emailing Marci Panella for information on how to become a campaigner. The Annual Campaign will begin September 15 and continue through October 24.
Paul Silver Tribute Award
Applications are being accepted for the 2014 Paul Silver Tribute Award. Patients ages 16-22 may apply for awards up to a $1,000. Applications and further details are available at Paul Silver Tribute Award.
ASF Research Funding
ASF, Macquarie, Pedersen Family and KFOC select two $100,000 projects for research funding
Create your own online fundraising page using our online site click here
|Augusta Ironman 70.3 – September 28 in Augusta, GA|
|Big Johnâ€™s Icehouse â€“ October 25 in Houston, TX|
|Broccolini 5K and 1 Mile Fun Run â€“ October 26 in Phoenix, AZ|
|Philadelphia Patient Meeting â€“ November 15 in Philadelphia, PA|
For more details about these events, go to Upcoming Fundraisers.
Check out our Fundraising & Events page for other ways to help ASF.
HELP WITH RESEARCH
|Help researchers learn more about AS. Join the Alport Syndrome Treatments and Outcomes Registry! click here|
Click here to read about ASF-funded research projects.