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Welcome to the Alport Syndrome Foundation

Thank you for visiting the Alport Syndrome Foundation website. This site is designed for patients and families affected by Alport Syndrome, a genetic kidney disease. It is our goal to provide a central location for information about this disease, to create an opportunity to meet and talk to other families who are dealing with Alport Syndrome, and to support research aimed at curing the disease. read more

Have you seen the latest ASF newsletter? Click Here

Presentations from the Alport Syndrome Symposium for Researchers, Physicians and Families click here to view presentations

View ASF's latest "My Story" - David Williams

Announcements

Register Now for the Family Conference

To review clinical practice recommendations for the treatment of people with Alport Syndrome click HERE

Upcoming Fundraisers – Click Here

Arizona 5K for Healthy Kidneys a Success – Results of the 5K are posted online HERE

Marathon Runner, Megan Dunleavy, Honors Brothers – Click HERE

NEW – Watch The Alport Syndrome Story Video