Select Page

Alport Syndrome: In the News



Bringing visibility to a rare disease
Oregon Health & Science University Foundation. December 21, 2021

Scottish Women in Sport Awards – our eight finalists
Scottish Athletics. November 19, 2021

A love story: One year after they met, his husband became his kidney donor
USA Today. October 16, 2021

Siblings with Alport Syndrome plead for kidney donors
News Channel 5 Nashville. September 20, 2021

A perfect match: Russiaville native receives kidney transplant from husband
Kokomo Tribune. August 31, 2021

‘I really want him to have a long life with me’: The love story behind a Denver man giving a kidney to his new husband
The Denver Channel. August 12, 2021

Sisters receive kidney transplant hoping their brother can, too
FOX 44 News. August 4, 2021

‘Jimmy’s Kidney Crew’ to host fundraiser to support family in need
Beaver County Times. August 4, 2021

Are you a match? Ottawa mother urgently seeks living kidney donor
CTV News. July 21, 2021

Organ donors a ‘ray of hope’ for people on transplant waiting lists
Irish Examiner. April 1, 2021

Rare Leader: Lisa Bonebrake, Executive Director, Alport Syndrome Foundation
Global Genes. March 25, 2021

How Kevin Schnurr Honors His Gift of a New Kidney
CareDx. February 3, 2021

Ione Pilot Living Proof of Mind Over Matter
Ledger Dispatch. February 3, 2021

Shae Hutchinson discusses his recovery after kidney transplant
Norwich City Football Club. January 18, 2021

My Cousin Gave Me Her Kidney—And Saved My Life
Reader’s Digest, Canada. January 14, 2021

Unsplash Typewriter



People in Your Neighborhood: Grant Bonebrake champions those with rare diseases and wins national award
PB Monthly. December 29, 2020

Norwich starlet Shae Hutchinson receives message of support from Eric Abidal after undergoing kidney transplant, with Barcelona legend – who had a liver operation during his playing career – sending ‘strength and courage’
Daily Mail Online. December 17, 2020

Man receives kidney from a friend who ‘never had a doubt’ she would be a match
The Catholic Spirit. November 30, 2020

Holidays are giving time for St. Clair Twp. police
The Review. November 27, 2020

Teen finds kidney donor after long search during pandemic
CTV News. November 5, 2020

Fife man thanks dad for the gift of life after successful kidney transplant
The Courier. November 2, 2020.

HELP ME HAYLEY: Colfax family moving to Texas in hopes of better odds for life-saving transplants
KHQ. July 20, 2020

Local woman urges organ donations after major decline

KSNT. April 13, 2020

5K for Healthy Kidneys set for April 5 in Crown Point

PB Monthly. March 3, 2020

The smiling Waltham Abbey boy with a rare kidney disease who ‘can’t understand why he’s in pain

Herts Live. March 3, 2020

Winter chill funds summer thrills at Camp Sunshine

Portland Press Herald. March 3, 2020

Norwich youngster Shae Hutchinson vows kidney transplant won’t end his career
Skye Sports. February 25, 2020

Living and thriving despite disease

The Daily Independent. February 22, 2020

Shae Hutchinson’s story: Under-23s forward on his comeback from a kidney transplant
Norwich City Football Club. February 17, 2020



Kidney donor: I would want someone to do it for my child
Norwich Bulletin. July 11, 2019

Where kidney transplants are a family heritage
Boston Globe. January 13, 2019