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Join Us: Direct Connect Meetings

February 1, 2022

ASF invites you to join us for 60-minute, staff- and volunteer-moderated Direct Connect virtual meetings (held over Zoom) that provide important opportunities for patients and family members to meet others facing similar life circumstances, ask questions, identify areas of need, and help lay groundwork for future educational content.

Topics will vary by month. Unless indicated otherwise, Direct Connect meetings are open to those ages 18+. ASF plans on hosting Direct Connect meetings designed just for teens as well, which will also be posted on this page. All meetings are free but require pre-registration to attend. Note: To encourage open conversation, Direct Connect events are not recorded.

Have an idea for an upcoming Direct Connect session? Email ASF Staff!





There will not be a Direct Connect in December 2022. We look forward to returning with more virtual discussions in 2023! Register with ASF to be the first to know about next year’s discussion topics.






Archive of Prior Direct Connect Events/Topics

November 2022: Alport Males – Sharing Your Experiences and Questions

October 2022: Identifying and Addressing Mental Health Needs in Alport Patients

September 2022: Parents of School Children Enrolled in Grades K-12

August 2022: Parents of Elementary/Middle School Patients; Parents of Teen/Young Adult Patients; Alport Females – Overcoming Challenges in Disease Management; Alport Males – Sharing Your Experiences and Questions

July 2022: Building a Support Network At All Stages of Disease

June 2022: Let’s Talk Alport Medications

May 2022: Coping with Alport syndrome for family and loved ones

April 2022: What to Know About Kidney Transplant: Before and After

March 2022: Let’s Talk Food: Recipes, Substitutes, & Successful Meals

February 2022: Coping with COVID Lifestyle Changes + Effectively communicating Alport needs with doctors, employers, schools, and more

January 2022: Ages 35-50

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