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The Alport syndrome Foundation (ASF) provides (collectively referred to as “the Website”) for educational purposes to people interested in Alport syndrome. ASF does not provide medical advice or services, or specifically endorse any individual or clinician in the diagnosis and treatment of this disease. Additionally, ASF does not endorse any specific commercial product mentioned on the Website. Health-related topics found on the Website should not be used for diagnostic purposes or be substituted for medical advice. As with any new or ongoing treatment, always consult with your physician.

By viewing this Website, or any content made available via the viewing of this Website, including but not limited to educational content, programs, blog posts, PFD documents, webinars, videos, and any/all ASF affiliated Social Media, you are hereby agreeing to all parts of this disclaimer. Please read this Disclaimer, in full, very carefully. If you do not agree, you should not view the website.

ASF assumes no responsibility or liability for any direct, or indirect consequence, and/or other damages resulting directly or indirectly from any action or inaction you take based on or made in reliance on the information, services, or material on or linked to on the Website.

For Educational and Informational Purposes Only

The information provided in, or through, the Website is for educational and informational purposes only, and, as stated above, patients should always consult with their physician before making any changes to their current treatment regime.

Medical Information

Since medical developments change frequently, the Website may contain outdated material. While ASF makes reasonable efforts to present current and accurate information, no guarantee of any kind is made. ASF is not liable for any consequence, damage or loss related to the accuracy, completeness, or timeliness of any information contained on the Website.


Any links or external websites are provided as a courtesy only. ASF has no responsibility for the accuracy or content of information provided by these sites nor should they be construed as an endorsement by ASF of the content or views of the linked materials.

Copyright and Trademark

The information on this website is protected under the copyright laws of the United States and other countries. Unless otherwise indicated, all information contained on this website, such as text, graphics, logos, icons, images, PDF files, audio and video clips, is copyrighted by and proprietary of Alport Syndrome Foundation. Individuals may download useful material from this website for private, non-commercial use only. The Alport Syndrome Foundation name, and affiliated logos, may not be used or reproduced without prior written consent. For consent and/or Website reprint permission, please contact ASF at [email protected].

Social Media

Opinions expressed by contributors through discussion on Social Media, including but not limited to Facebook, Instagram, Twitter, LinkedIn and, YouTube are not necessarily those of ASF.

Changes to Website Disclaimer

Changes to the Disclaimer can occur at any time and will be considered valid immediately upon digital posting of the new Disclaimer terms. As such, you agree to review the Website Disclaimer periodically, and accept its terms or to leave the Website if you do not fully agree with the terms of the Disclaimer.

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The names and contact information on this website are published to facilitate contact among those listed for ASF purposes only. These names and contact information are not intended for any commercial purposes. Please see our Privacy Policy for additional details.

Contact ASF

By using the Website you are agreeing to all parts of the Disclaimer. For any Disclaimer inquiries, please email: [email protected]