Membership with Alport Syndrome Foundation is free. Members get connected by receiving monthly e-newsletters and occasional emails with updated information about research, the patient community, clinical trial updates, events, patient and family meetings, ASF programs and services, and more. ASF does not share member contact information in any form and members can “unsubscribe” to our communications at any time.
When you click the blue button below, a new browser window will open directing you to our Kindful Free Membership Form. Kindful is the new platform ASF uses to manage all patient and professional contacts. After filling out the form in its entirety, ASF staff will reach out with a personalized message, containing resources relevant to your needs, usually within 48 hours of form submission.
Please note: If you already receive ASF email communications and would like to update your email address, email ASF Staff.
We look forward to connecting with you!