Alport Syndrome Foundation - Hope, Action, Support

An organization led by & dedicated to
the Alport community of patients & families

Teens

Ages 13-18

Young Adults

Ages 19-29

Adults/Caregivers

Ages 30+ / Parents of All Ages

JOIN THE ASF ALPORT PATIENT REGISTRY

Enrollment is the most important research step we can take as a patient community. READ MORE

August 2023 Newsletter

Back-to-School Discussion, Updated Transplant Surgery Resource, and more! READ MORE

IN-PERSON ALPORT CONNECT TIX NOW AVAILABLE

Join us in San Diego this October! READ MORE

ASF LAUNCHES NEW NATURAL HISTORY STUDY

Patients needed: Share your data with NEPTUNE to advance Alport syndrome research. READ MORE

Join Us: Direct Connect Meetings

Learn about upcoming virtual events! READ MORE

FOR MEDICAL PROFESSIONALS

FOR RESEARCHERS

CLINICAL TRIALS

Learn about ongoing clinical trials open to Alport patients.

“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.