Alport Syndrome Foundation - Hope, Action, Support

An organization led by & dedicated to
the Alport community of patients & families

Teens

Ages 13-18

Young Adults

Ages 19-29

Adults/Caregivers

Ages 30+ / Parents of All Ages

ASF LAUNCHES NEW NATURAL HISTORY STUDY

Patients needed: Share your data with NEPTUNE to advance Alport syndrome research. READ MORE

July 2022 Newsletter

Alport Connect 2022: Join Us for Education & Community Interaction READ MORE

New Alport Patient Registry Now Enrolling

All Alport patients residing in the U.S. are encouraged to enroll today. READ MORE

Join Us: Direct Connect Meetings

Learn about upcoming virtual events! READ MORE

ASF Community App – Welcome!

The expanded app is another way to participate in education, advocacy, and connection activities! READ MORE

Resources for Alport Patients During the COVID-19 Pandemic

Learn more about Coronavirus health and safety, hearing loss tips for virtual settings, and more. READ MORE

FOR MEDICAL PROFESSIONALS

Diagnosis, Treatment Guidelines, CME, Clinical Trials, and ASF’s Medical Advisory Committee.

FOR RESEARCHERS

ASF’s Research Program: Funding Focus, Current and Past Awards, and Proposal Guidelines.

“Why I Support ASF!”

In this video, meet John and Norah, and a few other wonderful members of the Alport community. They briefly tell us why they support Alport Syndrome Foundation.