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February 2024 Newsletter

February 2024 Newsletter

New Scientific Advisor, Ocular Research, Direct Connect, and More! READ MORE
JOIN THE ASF ALPORT PATIENT REGISTRY

JOIN THE ASF ALPORT PATIENT REGISTRY

Enrollment is the most important research step we can take as a patient community. READ MORE
ASF LAUNCHES NEW NATURAL HISTORY STUDY

ASF LAUNCHES NEW NATURAL HISTORY STUDY

Patients needed: Share your data with NEPTUNE to advance Alport syndrome research. READ MORE
Join Us: Direct Connect Meetings

Join Us: Direct Connect Meetings

Learn about upcoming virtual events! READ MORE

CLINICAL TRIALS

Learn about ongoing clinical trials open to Alport patients.

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“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.

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