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Patient Guide, treatment guidelines, genetic testing, family planning, support group & more.

PATIENTS/CAREGIVERS: Get involved by sharing your experiences & participate in projects supporting our community.

Learn about current clinical trials exploring new treatments for Alport syndrome.

Featured Story

2024 ASF Annual Campaign

Make a gift of any size to the Annual Campaign.

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October 2024 Newsletter

Kidney Transplant Resource, Aortic Research Funding, and more!

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Apply Today: Paul Silver Award

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JOIN THE ASF ALPORT PATIENT REGISTRY

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THERE IS GREAT REASON TO BE HOPEFUL ABOUT YOUR FUTURE!

Our mission is to improve the lives of people living with Alport syndrome through education, empowerment, advocacy, and direct investment in research.

Featured Videos

“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.

ASF Alport Patient Registry: Help Advance Alport Research!

Alport Connect 2023 Highlights Video

Alport Connect 2023 Keynote Address: Hopeful Advances in Research

Living Kidney Donor Interview: Mack

Alport Syndrome Female Diagnosis Stories

Follow @alportsyndromefndn

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