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JOIN THE ASF ALPORT PATIENT REGISTRY

JOIN THE ASF ALPORT PATIENT REGISTRY

Enrollment is the most important research step we can take as a patient community. READ MORE
August 2023 Newsletter

August 2023 Newsletter

Back-to-School Discussion, Updated Transplant Surgery Resource, and more! READ MORE
IN-PERSON ALPORT CONNECT TIX NOW AVAILABLE

IN-PERSON ALPORT CONNECT TIX NOW AVAILABLE

Join us in San Diego this October! READ MORE
ASF LAUNCHES NEW NATURAL HISTORY STUDY

ASF LAUNCHES NEW NATURAL HISTORY STUDY

Patients needed: Share your data with NEPTUNE to advance Alport syndrome research. READ MORE
Join Us: Direct Connect Meetings

Join Us: Direct Connect Meetings

Learn about upcoming virtual events! READ MORE

CLINICAL TRIALS

Learn about ongoing clinical trials open to Alport patients.

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“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.

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