Alport Syndrome Foundation - Hope, Action, Support

An organization led by & dedicated to
the Alport community of patients & families

Teens

Ages 13-18

Young Adults

Ages 19-29

Adults/Caregivers

Ages 30+ / Parents of All Ages

August 2024 Newsletter

Clinical Trial Updates, Alport Connect Photos and More! READ MORE

Apply Today: Paul Silver Award

U.S. patients ages 18-24 can apply through Friday, October 25, 2024! READ MORE

JOIN THE ASF ALPORT PATIENT REGISTRY

Enrollment is the most important research step we can take as a patient community. READ MORE

Join Us: Direct Connect Meetings

Learn about upcoming virtual events! READ MORE

FOR MEDICAL PROFESSIONALS

FOR RESEARCHERS & PHARMA INDUSTRY

CLINICAL TRIALS

Learn about ongoing clinical trials open to Alport patients.

“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.

Follow @alportsyndromefndn

Learn more about the 2024 Paul Silver Enrichment A

Drs. Simon and Carter of ASF’s Medical Advisory

We are ONE WEEK away from #AlportConnectDenver at

In honor of #WorldKidneyDay and #AlportAwareness M

As a #raredisease, #Alportsyndrome is commonly mis

Watch our full Alport Connect 2023 highlights vide

ASF’s patient and family meeting, Alport Connect

We’re proud to participate in @asnkidney #Kidney

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