Alport Syndrome Foundation - Hope, Action, Support

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Patient Guide, treatment guidelines, genetic testing, family planning, support group & more.

Patient Education

PATIENTS/CAREGIVERS: Get involved by sharing your experiences & participate in projects supporting our community.

Patient Research Opportunities

Learn about current clinical trials exploring new treatments for Alport syndrome.

Clinical Trials

Featured Story

2025 Annual Campaign

October 2025 Newsletter

IVF & Pregnancy Resource, Alport Connect 2026, Clinical Trial Sites Opening, and More!

November Direct Connect – Alport Men’s Health

JOIN THE ASF ALPORT PATIENT REGISTRY

Events Calendar

Nov 04 | 09:00 am

ASF’s 2025 Annual Campaign

Nov 19 | 05:00 pm

November Direct Connect – Alport Men’s Health

THERE IS GREAT REASON TO BE HOPEFUL ABOUT YOUR FUTURE!

Our mission is to improve the lives of people living with Alport syndrome through education, empowerment, advocacy, and direct investment in research.

LEARN ABOUT ALPORT SYNDROME FOUNDATION

Featured Story

“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.