Alport Syndrome Foundation - Hope, Action, Support

New HP

Patient Guide, treatment guidelines, genetic testing, family planning, support group & more.

Patient Education

PATIENTS/CAREGIVERS: Get involved by sharing your experiences & participate in projects supporting our community.

Patient Research Opportunities

Learn about current clinical trials exploring new treatments for Alport syndrome.

Clinical Trials

Featured Story

March 2025 Newsletter

Alport Awareness Month, New Pediatric Resource, Clinical Trial Update, and More!

ALPORT CONNECT 2025 MEETING

April Direct Connect

Living Organ Donation: Experiences From Our Community Wednesday, April 23rd at 7:30pm ET / 4:30pm PT

JOIN THE ASF ALPORT PATIENT REGISTRY

Events Calendar

ASF’s Research & Regulatory Workshop

THERE IS GREAT REASON TO BE HOPEFUL ABOUT YOUR FUTURE!

Our mission is to improve the lives of people living with Alport syndrome through education, empowerment, advocacy, and direct investment in research.

LEARN ABOUT ALPORT SYNDROME FOUNDATION

Featured Story

“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.