
JOIN THE ASF ALPORT PATIENT REGISTRY
Enrollment is the most important research step we can take as a patient community. READ MORE
August 2023 Newsletter
Back-to-School Discussion, Updated Transplant Surgery Resource, and more! READ MORE

ASF LAUNCHES NEW NATURAL HISTORY STUDY
Patients needed: Share your data with NEPTUNE to advance Alport syndrome research. READ MORE

CLINICAL TRIALS
Learn about ongoing clinical trials open to Alport patients.


“We’re in your corner!”
In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.