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Meet the 2024 Paul Silver Enrichment Award Recipients!

December 15, 2024 The 2024 Paul Silver Enrichment Award Selection Committee was deeply moved by the stories of each of this year’s applicants and was inspired by their unwavering efforts to achieve personal goals. The Paul Silver Enrichment Award was created in memory of Paul Silver, an Alport syndrome patient and film and music editor. […]

Alport Odyssey Zine

March 23, 2023 ASF is requesting U.S. patient submissions for the inaugural publication of Alport Odyssey, a zine exploring the Alport syndrome experience through the creative works of Alport patients. ​Alport Odyssey is a​​ space for patients to explore their lived experiences with​ ​Alport Syndrome by sharing artistic representations of stories, lessons, and reflections with […]