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Help sustain our efforts! October 24th – November 19th
New Alport Patient Registry Now Enrolling
All Alport patients residing in the U.S. are encouraged to enroll today.
re: FDA Decision on Bardoxolone Methyl
                                                                                                                       February 25, 2022 On February 25th, the U.S. Food and Drug Administration (FDA) announced its decision not to approve a New Drug Application for the use of bardoxolone methyl as a treatment for Alport syndrome. Bardoxolone methyl was investigated for safety and efficacy in Alport patients through the CARDINAL Study, the first-ever clinical trial […]
Join Us: Direct Connect Meetings
February 1, 2022 ASF invites you to join us for 60-minute, staff- and volunteer-moderated Direct Connect virtual meetings (held over Zoom) that provide important opportunities for patients and family members to meet others facing similar life circumstances, ask questions, identify areas of need, and help lay groundwork for future educational content. Topics will vary by […]
Patient Guide: By Patients for Patients
November 22, 2021 With the guidance of Medical Advisory Committee members, ASF’s Emerging Leadership Council is pleased to share a brand new, downloadable Patient Guide: By Patients for Patients. This new resource includes an up-to-date overview of diagnosis, disease symptoms, current treatment recommendations based on research, types of health care providers that may be helpful, and […]