Caregiver Action Network www.rarecaregivers.org The Caregiver Action Network (CAN) works to improve the quality of life for Americans who care for loved ones with chronic or disabling conditions.
Genetic Alliance www.geneticalliance.org
Genetic Alliance increases the capacity of genetic advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions.
Global Genes www.globalgenes.org Global Genes promotes the needs of the rare disease community.
National Organization of Rare Disorders www.rarediseases.org
The National Organization for Rare Disorders (NORD), is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan“ diseases and assisting the organizations that serve them.
Caregiver Action Network http://www.rarecaregivers.org/ The Caregiver Action Network (CAN) is the leading family caregiver organization in the US working to improve the quality of life for Americans who care for loved ones with chronic conditions, disabilities, and disease.
Rare Disease Legislative Advocates www.rareadvocates.org/about Rare Disease Legislative Advocates is a collaborative organization designed to support the advocacy of all rare disease groups.