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THERE IS GREAT REASON TO BE HOPEFUL ABOUT YOUR FUTURE!

Our mission is to improve the lives of people living with Alport syndrome through education, empowerment, advocacy, and direct investment in research.

Featured Video

“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.

ASF Alport Patient Registry: Help Advance Alport Research!

Alport Connect 2023 Highlights Video

Alport Connect 2023 Keynote Address: Hopeful Advances in Research

Living Kidney Donor Interview: Mack

Alport Syndrome Female Diagnosis Stories

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