Featured Story
Join Us: Direct Connect Meetings
ASF invites you to join us for 60-minute, staff- and volunteer-moderated Direct Connect virtual meetings (held over Zoom) that provide important opportunities for patients and family members to meet others facing similar life circumstances, ask questions, identify areas of need, and help lay groundwork for future educational content. Topics will vary by month. Unless indicated […]
THERE IS GREAT REASON TO BE HOPEFUL ABOUT YOUR FUTURE!
Our mission is to improve the lives of people living with Alport syndrome through education, empowerment, advocacy, and direct investment in research.
Featured Videos
“We’re in your corner!”
In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.
ASF Alport Patient Registry: Help Advance Alport Research!
Alport Connect 2023 Highlights Video
Alport Connect 2023 Keynote Address: Hopeful Advances in Research
Living Kidney Donor Interview: Mack
