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May 2024 Newsletter

Kidney Transplant Resource, Aortic Research Funding, and more!

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ALPORT CONNECT ’24: WAITLIST ONLY

Contact ASF to join the ticket and travel assistance waitlists.

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JOIN THE ASF ALPORT PATIENT REGISTRY

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ASF LAUNCHES NEW NATURAL HISTORY STUDY

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Join Us: Direct Connect Meetings

ASF invites you to join us for 60-minute, staff- and volunteer-moderated Direct Connect virtual meetings (held over Zoom) that provide important opportunities for patients and family members to meet others facing similar life circumstances, ask questions, identify areas of need, and help lay groundwork for future educational content. Topics will vary by month. Unless indicated […]

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THERE IS GREAT REASON TO BE HOPEFUL ABOUT YOUR FUTURE!

Our mission is to improve the lives of people living with Alport syndrome through education, empowerment, advocacy, and direct investment in research.

Featured Videos

“We’re in your corner!”

In this video, several members of the Alport Syndrome Foundation Community, in various stages of their Alport journey, share a bit of their stories and what gives them hope for the future.

ASF Alport Patient Registry: Help Advance Alport Research!

Alport Connect 2023 Highlights Video

Alport Connect 2023 Keynote Address: Hopeful Advances in Research

Living Kidney Donor Interview: Mack

Alport Syndrome Female Diagnosis Stories

Follow @alportsyndromefndn

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