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Resources for Alport Patients During the COVID-19 Pandemic

Dialysis patients, those with declining renal function, immunocompromised patients (such as those post-transplant), heart and lung patients, and those aged 65+ must exercise caution during the pandemic as COVID-19 can effect them more severely. Per the Centers for Disease Control (CDC), all patients in these higher risk categories should avoid large crowds and non-essential air travel all while following additional precautionary protocol.

With your continued safety in mind, please review the following information to stay informed during this ongoing global health crisis.


General COVID-19 Information


COVID-19 Vaccination Information


Preparation for Renal Patients and Higher Risk Individuals


COVID-19 Vaccination and Alport syndrome Treatment Medications


Dialysis and Transplant


Hearing Loss During the Pandemic

With many offices and educational settings shifting to an online format, hearing loss can present unique challenges. If you are an employee or student, it is critical to share your hearing limitations with the host of the virtual content. Parents of younger children are strongly encouraged to contact the school or teacher to explain their child’s situation and learn what type of aid is available. ADA compliance officers, in academic and workplace settings, can provide detailed, location-specific information. Many individuals, out of fear of judgment, suffer in silence. This will only result in missing out on vital information and additional miscommunication in the future. In accepting your hearing loss, and making slight changes to your routine, you can remain positive and productive during and beyond this global health crisis.


Mental Health and Coping During the Pandemic


Coronavirus and Youth


Published COVID-19 Articles and Research

Association of COVID-19 Versus COVID-19 Vaccination With Kidney Function and Disease Activity in Primary Glomerular Disease: A Report of the Cure Glomerulonephropathy Study.
Wang, Chia-Shi et al. American Journal of Kidney Diseases, August 31, 2023.

The urgent need to vaccinate dialysis patients against SARS-CoV-2: A call to action.
Francis, Anna. Kidney International, February 11, 2021.

Chronic kidney disease is a key risk factor for severe COVID-19: a call to action by the ERA-EDTA.
ERA-EDTA Council et al. Nephrology Dialysis Transplantation, January 2021.

COVID-19 outcomes for patients on immunosuppressive drugs on par with non-immunosuppressed patients, study finds.
Johns Hopkins University Bloomberg School of Public Health, January 7, 2021.

COVID-19-associated acute kidney injury: consensus report of the 25th Acute Disease Quality Initiative (ADQI) Workgroup.
Nadim et al. Nature Reviews Nephrology, October 15, 2020.

Acute Kidney Injury in COVID-19: Emerging Evidence of a Distinct Pathophysiology.
Batlle et al. JASN, July 2020.