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News & Announcements

Join Us: Direct Connect Meetings

February 1, 2022 ASF invites you to join us for 60-minute, staff- and volunteer-moderated Direct Connect virtual meetings (held over Zoom) that provide important opportunities for patients and family members to meet others facing similar life circumstances, ask questions, identify areas of need, and help lay groundwork for future educational content. Topics will vary by […]

Patient Guide: By Patients for Patients

November 22, 2021 With the guidance of Medical Advisory Committee members, ASF’s Emerging Leadership Council is pleased to share a brand new, downloadable Patient Guide: By Patients for Patients. This new resource includes an up-to-date overview of diagnosis, disease symptoms, current treatment recommendations based on research, types of health care providers that may be helpful, and […]

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